#35645 12-06-2007 02:33 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It seems each morning I wake up being starved for air into my lungs. It's as if an elephant was sitting on my throat and cutting off the air supply. This morning was the worst yet, I really didn't think I was going to make it. Is this the normal?? What fun this OC is for all of us. Shoveling snow yesterday in the fridgid temps and wonder if that could be why it is so bad today???
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35646 12-06-2007 05:19 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Duh! Jim, DON'T do that again!!! You're been through hell, and survived...what are you trying to do? commit suicide???
Get yourself checked, just to make sure! Just DO IT!
Lois
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35647 12-06-2007 06:18 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I agree jim-get it checked!!!
ps great to see the lady is back ,told you it was just a question of space for a week or two.
enjoy christmas
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35648 12-07-2007 12:13 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | She isn't back , just visited with her daughter, I thnk it's over but I can live with that.. It's snowing right now and i have to get out for a PetScan. LOL any volunteers? Hope you have a great day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35649 12-07-2007 01:42 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Jim: Hope you're enjoying the snow! It's supposed to be in the 70's here in Carolina for the next few days...
Keep us posted!
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35650 12-07-2007 03:21 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | OK Lois, rub in the sunshine LOL I'm jealous. Had the Pet Scan today. Have a great day in that sunshine !!!! Barb has a sister in Carolina..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35651 12-08-2007 01:39 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I saw her for awhile last nite at her aunts and today fo awhile.. One of you tell her to get her butt back here with me will ya? LOL 5 yrs and then zippo gone
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35652 12-08-2007 06:26 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | JIM talk to her!!!! Tell her whats in your heart,tell her you need her(which you do even if you wont admit it).Cancer has taken enough from you already dont let it destroy this too. cancer is a sneaky beast as you know so dont put it off,do it now.Flowers,candy,begging ,whatever it takes let her know in real words how much you care and the rest will follow i am sure.
We all need love Jim and she has been through so much with you already.
I would give both my eyes to hear Robins voice and touch his hand just for a moment,dont blow it Jim while you still have the chance.
You may be a tough old boy but that doesm't mean you cant pull on your romantic softie hat and win her back.Its the time of year to be with those you love,so pull your finger out.
love and hugs liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35653 12-09-2007 12:55 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
HAve you thought of writing to her?
That way you can express your appreciation of her, amend it as you go along etc. to be sure you're saying what you really need to say and how you feel about her>
I hope you get to see her again soon
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35654 12-09-2007 01:07 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | First of all, Jim - did you get the PET Scan?? If not, DO IT!
Second - Do stay away from shoveling snow for a while. If you put it off long enough, it will melt. (I know, I used to be a northerner)
And regarding your lady, I definitely agree with Liz and Brenda. "Faint heart never won fair lady". Do whatever to get some of those precious moments back.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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