#35303 06-13-2007 08:14 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Don't let that freak you out. My wifes doctor wouldn't give her test results over the phone and when she went in it wasn't anything.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#35304 06-14-2007 03:14 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Shar--thinking of you for your results tomorrow.
Whatever they are, take a deep breath and find some time for YOU!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35305 06-14-2007 07:01 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sharlee, Will someone close to you be coming with you when you see the doc tomorrow? Do you have a list of questions for him if it is the worst case and he thinks it is cancer? It's a good idea to bring a friend both for moral support and to help with the questions if you are just feeling overwhelmed. And they can celebrate with you if the news is good!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#35306 06-14-2007 10:19 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Sharlee - just wanted to let you know I am thinking about you and sending as many positive thoughts your way as I can. I hope and pray that you get good news tomorrow....
Ginny
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#35307 06-14-2007 04:49 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I am scared ..but I can do this..I can face tomorrow no matter what it brings as I know I have all of you with me. I am printing your messages and keeping them in my pocket !! I can do anything I have to because of all of you and my children. Dosent make it any better , but bearable. who knows maybe it will be Nothing.50-50 chance right !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35308 06-15-2007 06:49 AM | Joined: Mar 2006 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 62 | Sharlee,
I am wishing positive results for you. You will take each day at a time. You will get thru this.
Honestly- if you can live with an emotionally abusive alcoholic you can whip this cancer.
Keep your stength for whatever you need to do. Take care of yourself which means be selfish- that is not a dirty word.
Trust me- been divored for many years from the same type of man - have a happy and stress free life and have been married 11 years to the most wonderfull man.
You deserve better.I am here to support you- however I can.
Paula
Paula
caregiver to Gil dx SCC 11/05 T2N2M0
finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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#35309 06-15-2007 04:10 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Shar: Give us an update! Thoughts and prayers are with you! Lois
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35310 06-15-2007 08:31 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Well ..the answer is ..I STILL DONT KNOW !!! UGHHH
Ct was good. Dr didnt have report from Pet scan but he had the Images ( cus I brought them) and he dosent see any real hot spots. Yet Now he said He can feel the mass on the inside of the mouth as well, SO he just doenst know. Wanted dentist to do a panaromaic , thought possible tooth or root was causing this, well they fit me right away and did xray ...Not the problem. Dr is puttin me on an antibiotic and wants to wait 10 days to see me, wants to see if anti biotic will do anything ,
How can there be somehting there , that you can Visisbly see , and Feel and cauisng issues ( numbness and all ) yet dosent show up. I saw Dentist a few weeks ago too and he said it has grown as well. ughhhh I dont get it, After the 10 days I guess we go biopsy ,fun fun fun !!
Sorry I didnt write sooner .. My friend was here and her sis ( my other friend ) was in hospital,,, we waited around and the found out she was having an emergency C section ..so we go to hospital and find out it is her appendix and gall bladder so they are gonna take the baby ......5 weeks early !! ALL went well though ! So I am just getting home and exahusted and overwhelemed ..SO I will think clearly later ..any ideas ? Or questions I should ask?
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35311 06-16-2007 01:27 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sharlee, I don't know what your doc means by "real hot spots" but PETS are sensitive to the point of being oversensitive and if the report,as well as his glance at the images, show no hot spots, that is very good news. The fact that nothing shows up on the CT is good news.
You haven't taken antibiotics for this yet, right? If that's so, it does make sense to me, given the CT and PET results, for him to treat this as though it may be some kind of abscess before doing a biopsy. I am hoping for you that that's exactly what it turns out to be since even if you have to have a root canal that's a whole lot better than ahving to have radiation.
Overall, this sounds like hopeful news to me although I know it's frustrating to not have certainty. i'm glad your freind's delivery went OK. That's a lot tp deal with--having a new baby and recovering from surgery removing the appendix and gall bladder. I'm sure she is grateful you were there for support.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#35312 06-16-2007 03:44 AM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Shar,
I echo what Nellie said, even though you aren't sure yet, it does sound encouraging.
And the fact that you are going through all of this and probably had a rough day, the fact that you were still supporting your friend really speaks volumes about the type of person you are. You are a wonderful friend, and I am sure that anyone who is lucky enough to be close to you is very grateful.
I am still praying for you.
God Bless,
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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