#35070 04-24-2007 12:00 PM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | Thanks to all of you. I already got fitted for the mask and will start treatment on May 3rd. Just got a call today that they want to do 2 rad treatments one day a week and one treatment the other 4. Does anyone know why they do this?
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
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#35071 04-25-2007 10:19 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | AM 07,
There are many variations to the typical IMRT radiation treatment cropping up. All are designed to kill our cancer quicker and give it less chance to recover. That is why they stress the importance of completing the Tx without delays. Some other examples of the different variations are 2 rads a day with 1/2 the rad each time for the normal 6 to 7 weeks and 1 rad a day with double the rad for 1/2 the normal number of weeks.
The flip side of trying to kill the cancer as quickly as possible is sparing the normal cells of excessive damage. This balancing act has the researchers experimenting with these new variations.
My Tx at Moffitt is different even now for new patients and I just completed mine 8 months ago.
Please have faith in your team and try your best to complete the whole Tx on their schedule.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#35072 04-27-2007 02:30 PM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2006 Posts: 82 | I agree with so many other posters about this. The wait is absolutely the worst. Not having the information, or the experience makes you feel powerless. Even when I was sick during chemo and tired from the radiation, I felt like I had a plan, and I was following that plan.
Every day is a step forward...
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO 35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
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#35073 04-27-2007 05:04 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Anne marie 07
Yup just like every one says ..waiting is the hardest part ..fear or the unknown. I had a hard time to with anxiety ..HOT BATHS for me..that and looking on here to learn as much as I could . My dr put me on Buspar too . however that dropped my blood pressure dangeroulsy low so I had to go off and opted not to try anything else.SOON you will begin and you anxiety may lessen due to the fact you will know what to expect and you will be Fighitng this horrible disease !
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35074 04-27-2007 11:46 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | AM007 - It's true what Jeff says - about how your mind can just go to the worst that can happen instead of the best that could happen. Everyone reacts differently but the fact that some people do get through it with minimal side effects, also means it is possible for you to get through it the same way, too! Waiting is definitely the pits! the "Fighting" stage is SO much better and you are almost there. Hang in there and do whatever positive thing you can to get your mind concentrating on the positives coming your way.
Annette
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35075 04-28-2007 02:56 AM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | How do you know if cancer is in your tongue? I keep getting a tingling in the right side of my tongue. The soreness of my throat is now moving to the back of my throat.
Am I even posting this in the right thread?
I do feel a bit better as I am starting to understand more.
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
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#35076 04-28-2007 03:01 AM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | I only meet my teem as I go alone. I meet them all at once rather quickly the first day I was there, and that scares me too
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
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#35077 04-28-2007 10:56 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | AM007 - Any information you can get will help you feel better and more in control so you can fight whatever comes along. Have you checked with your doctor about the tingling in your tongue? When you meet with your team, or appointment, it would really help if you did have someone go with you to absorb all the information they throw at you. When you are trying to think of everything, it's easy to miss a point. When my son had his initial appointments, there were three of us there with him and I remember one time, each of us (4) remembered something different about a particular point! Not only that, the scary stuff is a lot easier to take when it can be diffused among more than one person.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35078 04-28-2007 11:53 PM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | I have no one except my ex-husband who goes with me. I did buy a tape recorder so I can review all that's been said. The Treatment starts this tuesday, May 2, 2007
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
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#35079 04-29-2007 12:24 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Anne-Marie 07- just remember that starting Tuesday your life is going forward. Stay strong, Lady. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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