#34877 01-18-2007 03:59 AM | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2006 Posts: 101 | So around one year ago I found this site, My Huband had been diagnosed with "the tongue cancer". We got through it with God and perserverance. I have been waiting for the next shoe to drop (a little pessimistic-I know) well it did. Erik is fine right now, but my mom is currently being diagnosed with "the cancer" She will be having a tonsillectomy on Feb 5th. It was an accidental finding. Dentist saw a white spot, she had a CAT and we went in to an ENT and saw a Physicians Assistant, who told us, "no big deal, these are a dime a dozen." Well the actual doc looked at her CAT about a week after the PA had seen her, and they called her back in. Apparently she has a tumor in the other tonsil. We went in and saw the ENT, and he scheduled surgery with urgency. AAAK Ive walked this walk already. His words were almost identical to what we heard when Erik was diagnosed. "It looks alot like cancer, but of course we cant be sure until we biopsy." My mom is 52 years old, a smoker for 37 years, has no insurance (working on getting state aid though) and needless to say Im a bit frustrated. I am her only child, she is not married and so I get to be her caretaker. We are awaiting her chest x-ray, the doc said that the tonsil may not be the primary tumor, and that he was concerned with her lungs. I dont know exactly what that meant, but I can de-code it a bit. My other worry is that I dont want her to lose her house, but Im not sure how to go about all of this. The good part in all of this is that the doctor told her he wouldnt touch her if she didnt quit smoking. And that there wasnt an oncologist who would take this on with any agression, if she didnt quit smoking. So she is quitting on Monday. Anyway, this is the road I've been put on, once again God and perserverance will get me through@ Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads. Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol- 3rd reoccurrence 5/18/12- partial glossectomy
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#34878 01-18-2007 04:32 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2006 Posts: 248 | Jennie, you have had a lot on your plate lately. I need medication just reading your post. Remember you are not superwomen please ask for help. Vent here regularly because you have to take care of yourself too. Taking a chest X-ray is completly normal as part of the staging process. I feel your situation and I am your biggest supporter.Don't ever be afraid to admit that you feel beaten down and when you do We'll be here for a big group hug to get you thru.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#34879 01-18-2007 08:28 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | jennie,
On the brighter side you are an experienced caregiver and you will be much more prepared to help your mom and much more prepared to handle what will be thrown at you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#34880 01-18-2007 12:40 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Jennie,
You and your family are in my prayers. I know you will be an outstanding caregiver to your Mom. You come with experience.
Why do you think she would lose her house?
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#34881 01-18-2007 07:01 PM | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2006 Posts: 101 | The reason I am worried about her losing her house is because she is going to have to be on state aid, I dont know if they will allow you to have any "collateral" she outright owns the house. Am I wrong in my thinking? Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads. Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol- 3rd reoccurrence 5/18/12- partial glossectomy
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#34882 01-18-2007 08:17 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | In most states, they cannot touch your primary residence, but you definitely need to see a lawyer or law clinic asap if you are concerned.
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#34883 01-19-2007 02:09 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2006 Posts: 248 | Jennie, The only thing I hate playing more than a DR. is a Lawyer. But I believe what you are thinking about is when someone goes into a long term care facility. Always, Mark D.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#34884 01-19-2007 06:24 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Jennie,
I agree...get with a family practice lawyer ASAP to be sure. Let us know what they tell you.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#34885 01-21-2007 12:58 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I agree with everyone, you need to see a lawyer or someone who deals with Medicaid planning which I am doing in April, but that won't help you now. The only thing Mom's non medicaid lawyer said was 'NEVER tell Medicaid she doesn't plan to return to the house, even if she is in a coma and on life support. As long as she intends to return, they can't touch the house.' I did find some interesting stuff on the rules for Florida by searching the web. Every state is different so you might try that.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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