#34331 10-04-2005 05:28 AM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 44 | I'm sorry to be out of touch for such a long while, but after spending most of March-August in Chicago with my folks, I had to return some attention to the life I left behind in Kansas. Dad had been recovering from the surgery & rad well enough to do the Retuxan booster (delivered like chemo) for his NHL (the other cancer he has) in August and I was praying for a long period of remission from both.
Sadly, Dad found a growth of some type on his tongue 2 weeks ago and after his insistence & Mom's, the ENT will remove it on Friday. Expecting day surgery and immediate word on whether it's malignant with detailed path to follow by Tuesday next. I leave for Chicago on Thursday nite. I pray for the best and expect the worst. I feel sad and angry beyond words. I couldn't convince Dad to get 2nd opinion and couldn't convince him to continue the rad for a full 33 followed by brachy. He was so miserable during treatment. RO told him 27 would be enuf if he couldn't bear it anymore...and what was it for in the end? I hate this disease...
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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#34332 10-04-2005 08:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | bellarte,
I am sorry to hear what you are having to deal with. My aunt just finished the CHOP treatment for nHL and is in the cruising stage (in Kansas of all places).
I am hoping for the best possible news for your dad.
Ed (born and raised a Jayhawk)
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#34333 10-05-2005 03:50 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Very sorry to hear this Tina, I'll hope for some good news.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#34334 10-07-2005 01:08 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Tina,
wishing you the best, it sounds like you've had a long row to how as they say down south. Hope things start looking up for you by the holidays.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#34335 10-12-2005 06:20 PM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 44 | Thanks all. Dad's ENT removed the tumor on Friday and it's smaller than April's but definitely the same thing. They say clean margins, but they said that before. Docs are saying no treatment option except more surgery when and if another growth appears...Thanks for your kind thoughts. Sorry I haven't gotten back to you for so long, Mark...I am interested in helping continue the foundation's work.
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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#34336 10-12-2005 06:23 PM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 44 | OOOps, thanks too, Ed, always good to hear from somebody with Kansas connections. My husband's a native, but he's a Wildcat. Hope your Aunt does well with her treatment. Dad has survived the NHL for more than 10 years and his CHOP + Retuxan has gone well...
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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#34337 10-14-2005 02:46 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | I am sorry to hear of this news about your dad Tina. I to am hoping for good news after the pathlogy report. Will be thinking of you both.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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