#3374 08-17-2004 02:13 PM | Joined: Mar 2002 Posts: 4,918 Likes: 68 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 68 | The Lance Armstrong Foundation, for whom I have recorded several taped interviews on survivorship, has asked that I spread the word to our base of influence to participate in the LAF Make the Promise effort. It costs nothing and your name will be added to the thousands of names being taken to Washington by Lance. If you go to the page below, it will give you a form to fill in. Please, in the blank that asks who you wish to honor or remember, put in the Oral Cancer Foundation if you do not have a specific person that you wish to place here. My hope is that OCF will appear with thousands of names that are taken to Washington. Send it along to your friends and ask them to do the same. It costs you nothing, though you will probably get annual emails from LAF asking for financial assistance. While I encourage people to give where their heart tells them, I also ask them to put there money where their mouth is.... here at OCF. http://www.tourofhope.org/promise/index.php
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#3375 08-18-2004 03:02 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Thanks, Brian, will get on this immediately!
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3376 08-18-2004 04:24 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 |
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#3377 08-18-2004 11:54 PM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 |
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#3378 08-19-2004 02:57 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | | | |
#3379 08-19-2004 04:25 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Done Deal!
Thanks, Brian
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#3380 08-19-2004 07:19 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Thanks for passing this along to us, Brian!
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#3381 08-19-2004 11:15 AM | Joined: Apr 2003 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 30 | I made a promise too! Thank you for the information.
Becky Ray | | |
#3382 08-19-2004 12:54 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Already did it -even have my yellow wristband.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3383 08-20-2004 12:07 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Brian,
One more -- done.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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