#33652 08-31-2004 01:54 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Amen, Vickie!! Amen! Just wanted to mention a good little book I just read, "There's No Place Like HOPE", it was excellent, written by a cancer survivor named Vickie Girard. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#33653 09-01-2004 04:37 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Miss Vickie,
AMEN...and amen!
When I read stories such as yours I feel so unworthy to be in your presence on this site. I have had no surgery, ONLY chemo/radiation. I struggle on some days with things that used to be so menial. I now have developed arthritis in a hip and shoulder and then a couple of weeks ago a herniated disc in my lower back. I know many people go through what I have in life and then much more. I think of you often and wonder why I feel I have any right to complain with my life. The only visible scars I really have is my new permanent "sun tan" across my neck and thenew curls in my hair in the back.
I am so grateful to have met you; I pray for you every day.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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