#3287 08-13-2004 08:13 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Miss Vicki,
This is clipped from Bob's post earlier:
"Get together is on weekend of September 24, 25 at the Imperial Palace Hotel and Casino in Las Vegas.
Friday night Sept 24th, arrival, meet at the "Pearl" room from 5:00 P.M. to 9:00 p.m. for name tags, snacks, a general meeting and greeting and a hearty "Hello." There's nothing formal planned at this time, just more a get to know everyone, hugs and such session.
For Saturday, a day time activity we're working on possilby is a "Cancer Shoot" AKA "Taking Aim at Oral Cancer" at the Gun Store in Las Vegas. The medical community as shot us up with radiation and chemo, now it's our turn to shoot at "cancer cells" and get our revenge!! Details on that to follow..
Buffet dinner is planned for Saturday evening at 6:00 p.m. in the "Dynaty" room, followed by talk by Brian and others, and a fund-raising raffle for OCF. Have some neat prizes already set, but anyone who wants to donate raffle prizes please contact either Dinah or myself. There's also talk of an on-line silent auction for those who can't be there in person.
We've got the Dynasty room from 2:00 p.m. so we might have a late afternoon disussion group set up also, we're still working on that.
For lodging, we have special rates set up with the Imperial Palace as follows.
Thursday 9/23 $59.00
Friday/Saturday 9/24-9/25 $79.00 (note the hotel does NOT accept Saturday arrivals)
Sunday 9/26 $59.00
Room rate is based on one or two people. There will be an additional charge of $19.00 per person for over two people.
People attending will be responsible for making their own reservations. Call 800-800-2981 for reservations; please identify yourself as being with the Oral Cancer Foundation for special room rates.
Room rates are net, based on single or double occupancy and subject to Clark County Room Tax of 9%
Price for the Banquet will be $40.00 per person, payable in advance. This will cover the banquet room rental for Friday and Saturday, Friday snacks, the Saturday night buffet banquet,and incidentals. Any left over will be donated to OCF. "
Ed
Bob (JetAgeHobo) will be collecting the money for the banquet, please have checks to him by 3 weeks before the event if possible. Make the checks out to Robert Szabolcsky
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3288 08-13-2004 02:38 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Great stories about the children and grandchildren. For me, I've pretty much come to grips with what could happen, but the main thing that would bother me is not growing old with my wife, and leaving her alone. On a happier note, I noticed above I forgot to include my address for mailing those all important checks for the banquet.  Address is Robert Szabolcsky Apt 1219 14781 Memorial Drive Houston, TX 77079 Looking to have a great time with all of you in Vegas. Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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