#2918 07-06-2004 02:58 AM | Joined: Jun 2004 Posts: 11 Member | OP Member Joined: Jun 2004 Posts: 11 | Last July, I had surgery for T2,N2b, Stage III tonsillar/tongue cancer. I completed my radiation on October 31st which seem an appropriate date to complete that terrible experience. I applied for VA benefits based on Agent Orange exposure and was rejected....seems that prostrate cancer and respiratory cancer are automatic but tonsillar is outside the realm of the respiratory system. Are there any other Vietnam veterans out there with advice...needless to say I plan to appeal. | | |
#2919 07-06-2004 06:35 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | A close friend of mine says that the VA typically rejects ALL of the claims from Vietnam Vets for Agent Orange the first time through. He told me there is a network of vets that know how to get through the system (he also has Agent Orange exposure). Email me privately and I will try to put you directly in touch with him.
Unless you're breathing though your butt how is prostate cancer part of the respiratory system ;-)?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2920 07-06-2004 10:15 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | Gary,
You crack me up! Not to stray from the subject but I thought I would add this for something crazy....I was at the Colorado River this past weekend and my husband was speeding down the river at night on our boat and we got pulled over by the sheriff he said that kids these days are doing a reverse "beer bong" actually pouring the beer into a tube that goes into your butt because alcohol has stronger affects in the small intestines and it gets there faster that way. His comment was "they must be pretty close friends to do it that way". So I guess if you can drink through your butt who knows.......
I hope I didn't offend anybody I just couldn't believe it when the officer told us and seeing Gary's comment about breathing through the butt......
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#2921 07-06-2004 10:35 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I've heard of that - wine enemas have been around for a while. The beer thing is a new spin though... I can only imagine the colon cancer risks.
Actually I think some people DO breath through their butt!
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2922 07-06-2004 11:08 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | ...or at least, talk through it! 
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#2923 07-07-2004 04:10 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | As another Vietnam Vet I know a little about this. There are several things the VA looks at. First, the record of units and areas of operation that you were assigned to and operated in while in country. The records of where geographically and on what dates the Ranch hand program sprayed not only Agent Orange, but also agent white and other toxins/carcinogens are well documented. The records of unit movements in these areas in the years afterwards are also there. If your records do not show that you were in the mix, geographically and time-wise, you will not qualify. The primary cancer that dioxin is associated with is Lymphoma, and ironically enough Admiral Zumwalt, who was in charge of the program and ordered the spraying, had a son who was a brown water sailor who died of lymphoma right after the war as a result of the use of Agent Orange. While I will not argue that the government screwed us all for years (while they were waiting for their army to die before admitting complicity and responsibility), there have also been a bevy of vets with cancers that have no relationship to these defoliants trying to get in on the benefits (crappy as they are). People who have smoked heavily since the years of the war and now have lung cancer will have a hard time getting a claim approved in spite of their service. It would seem that even in this case where there are real people who were harmed by this policy of defoliant use, there are also those who would like to not take responsibility for their lifestyle choices, or other precipitating factors to their disease. Oral cancers are seldom the first cancer of choice for these Agent Orange carcinogens to initiate. Tonsilar and oropharangeal cancers are heavily tied to viral exposure, and I am living proof of this. If use the search tool and the word Vietnam, you will read old posts regarding this same subject.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#2924 07-08-2004 02:30 PM | Joined: Jun 2004 Posts: 11 Member | OP Member Joined: Jun 2004 Posts: 11 | Brian....Thanks for responding to my posting. Followed your advice and used the search tool with the word Vietnam....read several more of your opinions. As we both should know, Vietnam veterans usually only have one thing in common...being a Vietnam veteran. Never the less, people continue to attempt to sterotype us and throw us all into one big irresponsible pot. I mentioned in my bio that I was an engineer...I'm also a psychologist. Some of your responses bring a smile to my face....thank you....enjoyed the reading.  | | |
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