#29120 06-03-2007 04:20 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Hi, question My husband is spitting up mucous and has a swallowing problem now. His final radiation is Monday June 4th. Question and I know this has been covered. When does the mucous STOP? When should he start to feel like his sore throat is easing off? What is the buildup in his throat all about? (hurts to swallow because if feels like there is lumps in his throat) He is not getting much sleep at the time. He has a humidifier in his room and the noise drives me crazy...I am sleeping in the next room. Any suggestions.
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#29121 06-03-2007 06:02 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Feb 2007 Posts: 168 | Carol it's a little different for each of us as far as the mucous goes. As long as the docs are aware of all you posted all you and hubby can do is ride it out. Alot of people have said they used a suction machine that really helped with the mucous. It was almost four weeks before I could go off my pain meds for the sore throat and I didn't start them until the last week of tx. Then at about the 4th week post tx the pain went away and I stopped my pain meds. Now I just try to stay on top of the thrush and try to eat solid food occasionally. I slept as much during the day as I did at night it seemed. I actually never had a huge build up of mucous. I don't know why. Hang in there. For me it seemed like it got a little tougher after tx. Although mid treatment was tough too because of nausea and weightloss and no peg. But it all could have been much worse.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you. Lee
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#29122 06-03-2007 08:59 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Dear Moma.
I have not been thru this but have read a lot.
Did they give him the "miracle mouthwash"? He should use that and then swallow a few times for exercise. Also, look into a suction machine for the mucosis. I'm sure you will get more responses soon. Good Luck, Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#29123 06-03-2007 09:27 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Petey, thank you for your reply. We have the miracle mouthwash. This mucous builds up in the mouth and then the person spits in a kleenex etc. A suction machine is not necessary for this spitting. I am familiar with a suction machine and its uses as part of our nursing techniques. (I work with the elderly)I am wondering about the lumps in my husbands throat and when the spitting will stop. I also wondered about his sore throat. 1 radiation left, 1 chemo pending. Thanks again. Carol...
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#29124 06-04-2007 03:45 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hey Carol, I don't have an answer....just wanted you to know that I am thinking of you. Good luck! Guess this is kind of what you were telling me about? not this exactly but the overall experience? I pray that I will be as strong as everyone else is here. I hope he gets some relief, must be so frustrating. Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#29125 06-04-2007 10:27 AM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Feb 2007 Posts: 76 | Hi Carol
Marvin is in his 6th week post tx and still has mucus problems. But it does seem to be getting better. He doesnt have to spit up as much. We tried something over the counter that was to help with mucus but it only made it thinner and he had to spit it up more. So we gave that up.
Barb CG for Marvin.
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#29126 06-07-2007 03:21 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Carol,
Mine were gone by the 2nd week post Tx but I was so sick it didn't matter much. By the 3rd week I was feeling much better all around and on my road to recovery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#29127 06-11-2007 08:43 AM | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | My mucositis peaked the last week and then 2 weeks after treatment ended. I had terrible nauseau from the muscous emptying into my stomach at night and then I think also blood from the back of my throat. The two weeks after treatment were tough and thennow I m getting better every day. He will turn the corner soon. RAdiation and chemo together are really tough on the body but very very effective in killing all the stray cancer cells.
Hang in there and know that this suffering is not in vein.
Kate B.
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
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#29128 06-11-2007 09:15 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Thank you all for your replies. The mucous is getting less and less but there is an acidity taste in my husbands throat. He is complaining of a dry mouth now and as before. Any suggestions. I was thinking the mucous comes from radiation but I am wondering if it is from the chemo. We have water, ointments, oil to remedy the dry mouth but still he has to be awaken every hour when sleeping at night. He sleeps on our loveseat with his head hanging over his body. I bought a recliner (delivered Thursday) for him to sleep in. He cant sleep in bed because of the mucous. Sad state of affairs to see him like this. Thanks again.
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#29129 06-25-2007 04:38 PM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2007 Posts: 35 | Kate B and Mommapez Can you tell me what you did when having the Mucus problem. David is having alot of problems with this his mucus is abundant. He is up constantly gagging ang throwing up mucus. It is not just some to spit into napkin. Any help or things you did would be most helpful,
He lays down and on his side. I think he should be in a more reclined upright position,,
Thank you all for any advice.
Caregiver in Florida DX tonsil cancer 4/13/07 both tonsils removed both positive.,. Stage 4 with 3 nodes on Right and 2 nodes on left. Just finishd 2 chemo - cisplatn and 35 Radiation 6/22/07
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