#28851 04-19-2007 12:18 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | I'm slowly making progress to be seen for treatment. I fear I may have to go to the emergency room and start screaming bloody murder until they see me. The lymph node under the left side of my chin is almost the size of a golf ball now. It is looking repulsive. I can not touch my chin to my chest because of it. Can it burst? Do they drain them? My tumor is also changing. It looks like a small pea sized lump of skin is growing at the front of the tumor. For the first time I am experiencing real fear and urgency. Also my GP prescribed percocet. They help a little more than the percodan but make me a little nauseous and I need to take 2 to not have pain. Other than go see a tumor board....any suggestions? How about a better med? I think my Doc thinks I just want a buzz. To me, & the mirror it is quite obvious I am in pain.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#28852 04-19-2007 01:24 PM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 |
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
| | |
#28853 04-19-2007 01:40 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Petey, If, in fact you have been diagnosed with cancer, then the Doc. who thinks you "just want a buzz" is an IDIOT! Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#28854 04-20-2007 12:51 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Petey, Robins secodary tumour in his jaw area,grew at an alarming rate once it appeared.By christmas he couldnt open his mouth to eat at all and he was in constant pain.If yours follows the same course you will have no choice but to have urgent medical attention.Robins felt very hard to the touch and i dont think there was any question of it bursting but there was always the danger of it leaking cancerous cells to other tissues
Liz in the uk
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | |
#28855 04-20-2007 09:35 AM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2006 Posts: 137 | Petey, you need surgery. The swollen lymph node is a metasisis of the cancer. Where is the primary?
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
| | |
#28856 04-21-2007 03:44 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hey RileyMc. I sent you 2 private messages. (not read) Read the faq at the top of page to learn about them. Awaiting your replies. Petey 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#28857 04-21-2007 06:11 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Petey, you have a right to pain management. If the meds you have aren't working, say so and demand something that will. Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | |
#28858 04-22-2007 02:02 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hey Wayne. By reading the charts on www.nccn.org I would say my pain is a 6-7. It says I should use a stronger opiod. My GP is not a cancer Dr. What would you suggest I ask him for. I am rx-101 in meds. I had percodans but had to take 3 at a time to be comfortable. He then gave me percocet. They are a little better, but I still use a double dose.Also they only give about a 7-10 day supply. I printed a few pages for him to read. I know I can't just walk in and say, hey Doc, how about some morphine or oxymorphone. If you think that's too strong, how about oxycodone. What do you suggest? Thanks for helping.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#28859 04-24-2007 03:56 PM | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2007 Posts: 93 | Petey,
My sister was prescribed percocet for her pain which took too long to kick in, she would reach 10 on the pain threshold and then have seizures. Her oncologist gave her liquid morphine, which works a bit faster and seems to keep the pain in check. One thing she learned is not let the pain get too bad, before you take the meds. Once it gets to 3-4 level you should be taking the pain reliever. She is on a peg tube so takes the morphine with a bit of formula (food), because morphine can cause nausea on an empty stomach, but taking it with food decreases it's effectiveness, it's a two way street. Good luck to you and you are entitled to good pain management, be sure you share that with your doctor. Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
| | |
#28860 04-24-2007 04:42 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Thank You All! He prescribed oxycodone 15. They are better and 1t keeps it tolerable. Nancy, I hear you. I try not to take them but why hurt? What I do now is take them on a 5 hour schedual. My pain is increasing beacause I'm not in treatment. That will finally end!
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
Forums23 Topics18,249 Posts197,140 Members13,323 | Most Online1,788 Jan 23rd, 2025 | | | |