#28595 02-25-2007 04:48 AM | Joined: Feb 2007 Posts: 5 Member | OP Member Joined: Feb 2007 Posts: 5 | I am 27 years old. There is a growth in my throat on my soft palate that's been there for a year. I had a CT scan done last month and results were that my lymph nodes are swollen, but hard to see anything because I have fillings and made the scan unclear. I have surgery scheduled in June to remove the growth as the Dr. said it looks abnormal and they will send to pathology afterwards. They said it could be tonsil re-growth (had them removed as a child) or a pampilloma or a fluid filled sac, they are not sure so want to be cautious. The growth feels like a very mild sore throat, and the soreness spreads to my ear canal. I am trying not be to worried, but I can't help it. I am glad they are removing it but uneasy and not sure how concerned the Dr.'s are that it is cancer. I would appreciate any advice or stories. | | |
#28596 02-25-2007 05:10 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Why are they waiting until June to do surgery? Our collective experiences dictate a more urgent response. I would find another doctor. I would get a Pet Scan. It's your body and it's your life. I would not wait to find out what you are dealing with. It may well not be cancer but that can't be excluded and if it is cancer time is of the essence. Make calls tomorrow until you get something started.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#28597 02-25-2007 05:31 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | It is really important that you take care of it right away. My son kept putting off doing something about the pain under his tongue until it got so bad that it forced him to get a biopsy and they told him that the reason he had the pain was because the cancer cell was wrapped around a nerve. Not all cancers are accompanied with pain. You might find that there is nothing to worry about but waiting until June to find out only gives you more time to stress out over this. It is better to find out NOW so that if you have to, you can start fighting it right away for a successful outcome. Please do whatever you have to, but do it right away. Your life is important!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#28598 02-25-2007 09:29 AM | Joined: Feb 2007 Posts: 5 Member | OP Member Joined: Feb 2007 Posts: 5 | Thanks for the advice, I appreciate your input. I will ask if I can get in on a cancellation, if one should come up. Any other advice on how to get them to move my sugery date up? Wait times here in Alberta are bad. A friend of mine who has thyroid cancer had to wait 1 month to have his thyroid removed. | | |
#28599 02-25-2007 10:43 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | A fellow who posts here with the user name Dragan is also being treated in Alberta. Search for his profile and send him a note -- maybe he has some insight on how you might go about jumping the queue.
All the best-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#28600 02-25-2007 12:09 PM | Joined: Feb 2007 Posts: 5 Member | OP Member Joined: Feb 2007 Posts: 5 | David, what is a PET scan? | | |
#28601 02-25-2007 12:23 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Time is of the essence here. i had a sore in my mouth for like 9 months that I never thought was anything. My dentist ,dr and oral surgon all thought it was nothing as I am 35 female never smoked and very very casual drinker. But decided to remove the lesion and biopsy it 2 days later they were telling me it was cancer and I was off to see another dr and another surgery and waiting to hear on radiation and chemo . so unitl they biopsy you wont know and why put yourself through the agony of wondering ( can be one of the worst parts ) and if It is you want to have it take care of. I would just expalin to the dr your concern and see if there is anyway to move up the surgery .
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#28602 02-25-2007 06:27 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Mom--I, too, had some problems with my scans being affected by my dental work. You asked about a PET scan......Positive Emission Tomograph....shows very precise details of tissues....it is usually combined with a CT scan, which shows precise location but indistinct detail. The combination gives very good diagnostic information about the nature of a lesion, as well as its location.
The PET uses a radioactive glucose solution that is injected. The marked glucose is taken up by tissues that are more metabolically active than others. Cancer cells are rapidly multiplying cells, so they take up the solution more than normal cells. For this reason.....to get the very most accurate images, you need to curtail your physical activities prior to the scan. My son is a radiologist, and he gave me this advice. He said that, since the most important area of the scan for us is the head and neck...the mouth....one should not eat or chew gum for hours before the scan, nor talk excessively, so that those muscles are not exercised before the scan. You don't want muscle tissue to take up the solution and perhaps disguise the tumor.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#28603 02-25-2007 11:26 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Why not just get a biopsy? I agree with the others that waiting until June is simply unacceptable. Are you seeing a head & neck surgeon or ENT? A PET scan is a little premature at this point. The biopsy/pathology report is the gold standard diagnosis. It is a relatively painless and quick procedure.
Tonsils can grow back if they were not completely removed during childhood.
Also, many of us had NO pain. Tonsil cancers can be very stealthy and asymptomatic. They estimated that my tumor was 2 years old when they finally dx'd it.
Pain and swollen lymph nodes could indicate an infection or PTA (peri-tonsillar abcess). You could even have an impacted/infected wisdom tooth).
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#28604 02-26-2007 04:00 AM | Joined: Feb 2007 Posts: 5 Member | OP Member Joined: Feb 2007 Posts: 5 | I am seeing an ENT and head/neck surgeon at the University of Alberta. I have had my wisdom teeth removed. I am hoping that this is just some tonsil re-growth. Hopefully it is nothing. I am going to call the office today to try and get into surgery sooner so I can put my mind at rest. All of this input is really helpful, thank you to all of you for being so helpful and supportive. | | |
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