#27781 10-07-2005 02:30 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hello All,
I found this board after my sucessful treatment for SCC base of tongue, and two lymph nodes. Had 35 rad, and 2 rounds of 5FU, plus taxol (sp), cisplatin (sp), and two other chemos. Yesterday, Oct 6, was the one year aniversery of my first 5FU 4 day treatment and the beginning of a long road. Used PEG tube for four months, ost 60lbs. (needed to lose the weight anyway) Finished treatment Dec 6th, had modified rad neck disection on Jan 31. Started working out two weeks after surgery. So far, so good. Am in remission. And continue to gain strength. Am now 58, was not a smoker.
This forum is great. I wish I had seen it before and during treatment. I hope all I have talked to and posted are well and fighting this ugly thing.
Remember Jimmy Valvano "NEVER GIVE UP"
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#27782 10-07-2005 07:52 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | Steve,
Keep up the fight. Sounds like you have turned the corner. The people on this sight are amazing aren't they.
best regards,
John | | |
#27783 10-07-2005 08:04 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Steve, Happy Anniversary! Party TIME!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#27784 10-07-2005 10:08 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Steve, awesome news! Happy Anniversary and many, many more! Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#27785 10-07-2005 10:15 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Congratulations Steve !
One of the best tools we have in fighting this thing is a good positive attitude....something you have in spades!
Way to go.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#27786 10-07-2005 10:38 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 |
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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