#27532 06-25-2005 11:15 AM | Joined: Jun 2005 Posts: 6 Member | OP Member Joined: Jun 2005 Posts: 6 | Hi~
I have a very small lump in a lymph node on the side of my neck (1 cm). I went to my primary physician who was very concerned and felt it should be looked at right away by an ENT.
I assumed it was related to the thyroid problems I had been having the past few months, however, the ENT spent a lot of time looking down my throat.
He put me on antibiotics for a week to see if that would change the node - but it did not.
I also did an MRI which should several nodes 7mm and under and then the one node at 1cm. It did not find anything else abnormal in the mouth/naso areas. The node that is 1 cm receives its drainages (don't know if I'm wording that correctly) from the tongue, soft palate and the throat. Besides that fact, the reason why I am suddenly concerned about an oral cancer is because I have had this recurring "pimple" (that's what it feels like with my tongue) in my mouth where the hard and soft palate come together. I have given it only brief thought in the past six months because I thought it was odd to have this thing come and go in the same spot all of the sudden. I wasn't worried about it though. Now I wonder if that could be a problem.
My question is this - does there have to be a lump of something that the MRI could pick up - or could oral cancer be this discreet?
I had breast cancer 9 years ago at the age of 28. I had a bilateral mastectomy and chemo. I have to say, it was nothing compared to what I have read here - you people are amazing!
I would greatly appreciate any feedback - I am going in and out of panic mode.
Thanks!
~wen
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#27533 06-25-2005 11:44 AM | Joined: Jun 2005 Posts: 29 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2005 Posts: 29 | Hi Wendy,
While I am no expert and Ill let more experienced users comment after myself, the key is that you saw the ENT and he found nothing, nor did the MRI. That is actually really really good news.
What I would recommend doing on your next visit (and this may already be his plan anyway) is to have the node biopsied if this hasnt already been done. This would give a more definitive diagnosis as to what is inside the node itself and could point to any other areas of concern.
I wish you the best of luck! Ian. | | |
#27534 06-25-2005 12:17 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | First off, you have to allow 2 weeks for response to antibiotics, not one. If there is no response then you need to go to the next level -i.e. a biopsy.
MRI's can detect tumors larger than 2 mm as a general rule. Of course this also depends on the skill and experience of the reading radiologist.
Lymph nodes will swell up when there is an infection - that's their job.
Are you being seen at a comprehensive cancer center?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#27535 06-26-2005 05:09 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | Wen...
What part of California are you in?
If you are anywhere NEAR San Francisco, go to the UCSF walk-in FNA clinic.
It is at 1700 Divisidero St.
Get your Dr to write a Rx asking for an FNA of the largest node that you can feel.
They will examine the results right there under a microscope and tell you what they are thinking.
Since I am not a medical professional, the advice is just a layman's suggestion.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#27536 07-06-2005 05:13 PM | Joined: Jun 2005 Posts: 6 Member | OP Member Joined: Jun 2005 Posts: 6 | My needle biopsy came back positive last week, but the type of cancer unknown. After ultrasounds, pet/ct fusion scan, bone scan - they saw a small spot (1 cm) on my right lung (and a couple 3mm spots they say could be on any healthy person.) The spot on the lung had a SUV rate of 2.4 which is very low. The lymph nodes in my neck didn't really show up as unusual- the Dr who analyzes the scans was surprised I already had a positive diagnosis.
I had surgery yesterday to take out the lump in my neck lymph node and other exploratory little biopsies in my mouth and throat to try to determine the source. At this time they are speculating a breast cancer recurrence but I won't know until at least this friday. They took out my left tonsil to check that out too.
~wen
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#27537 07-08-2005 03:16 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2004 Posts: 117 | Wen,
I am so sorry to hear your sad news. I will keep you in my prayers.
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#27538 07-08-2005 03:25 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Wen, hang in there, you've been down this road before and you know how to keep your chin up. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#27539 07-10-2005 12:28 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | HI Wen, I'll pray for you too. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#27540 07-10-2005 01:23 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Hi Wen, I am praying for you and thinking about you...Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#27541 07-10-2005 03:35 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Wen,
You beat this once before and it's time to beat it again. Sounds like they found this at an early stage. Hoping you respond well to treatment. Please keep us posted as many of us will be pulling for you.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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