#2740 06-10-2004 02:07 PM | Joined: Jun 2004 Posts: 26 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2004 Posts: 26 | Hello all ...
I have just been posting on the board a few days now and find myself unable to leave ... I thought somewhere when I first joined the forum that there was a chat feature? I haven't seen anything about it on the board since.
Is there a chat room ?
Thank you all.
Betty
Caregiver to Sister, Woodstock, VT - 3/4 tongue removed & reconstructed w/forearm 5/21/04, some in the lymph nodes, neck dissection, brachy radiation in the hospital and now going through 2nd round radiation and to add cysplatin chemo. Stage II-III.
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#2741 06-10-2004 02:25 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | I know so did I when I first joined up on here. But if there is I haven't found it or seen it. There is so much going on, on this site it is hard to keep up with it all. But ask your questions if you have some we will try our best to answer them or to help you or just listen, i just need someone to listen sometimes, Always, Miss Vicki | | |
#2742 06-10-2004 02:36 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Welcome again to the Oral Cancer Foundation Betty.
I don't think there is a real time chat room here. When you post a question in one of the sections someone will usually reply that day. It is a close knit family of members. You will get to know us as well as members of your family. You can also private message and or email many of the members.
We can vent here about cancer and all the different treatments to people who can relate.
I don't like people feeling sorry for me. Last year I was DX in mid-July and we had a family reunion three days before my surgery. We have a reunion every year. Well when the cameras came out and everyone wanted to take a picture of me
it made me feel worse. If you know what I mean.
We all go thru a pity party at some time but if you are a regular poster here that won't last long. There are so many others who have battled like hell to survive this bastard of a diaease. The bar was set quite high. I'm sorry if I loss sight of your posting but I have been a little down myself the last week or so.
I believe it's harder to be a caregiver than a patient. There is a special place in God's world for caregivers.
Best Wishes, Danny Boy!
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#2743 06-10-2004 03:20 PM | Joined: Jun 2004 Posts: 26 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2004 Posts: 26 | Thank you Vicki and Dan,
At least now I know I'm not the only one seeing things !!
Kind regards ...
Betty
Caregiver to Sister, Woodstock, VT - 3/4 tongue removed & reconstructed w/forearm 5/21/04, some in the lymph nodes, neck dissection, brachy radiation in the hospital and now going through 2nd round radiation and to add cysplatin chemo. Stage II-III.
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#2744 06-10-2004 04:27 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | There is no real time chat room for two reasons. First OCF can't afford it. With over 13 million hits on the site per month we pay for a thing called bandwidth, above and beyond the cost of hosting the site itself each month. A live chat room eats bandwidth like crazy, and our month nut to have the site up would jump from $1500.00 plus or minus, to the sky
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2745 06-10-2004 06:38 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Worse comes to worse I would suggest something like one of the widely available instant messaging programsat least more real time communications if you really want it. These day's I'm having my morning coffee with a "IM" chat with Judy every once in a while, who is doing her evening catching up or such on the internet.
Unfortunately for her, I fired up the web cam and she got a "live" feed of my ugly mug. Technology has it's advantages and disadvantages I think.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2746 06-10-2004 07:55 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Couldn't we do a chat through something like ICQ?
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2747 06-11-2004 12:41 AM | Joined: Jun 2004 Posts: 26 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2004 Posts: 26 | Hi all, and especially Brian --
It was not that I was looking for or needing a chat feature, it was that I thought I saw this option available when I first found the site, and then couldn't find it again. Absolutely and yes 100 times over, that this site has a phenomonal amount of support and information. I am very thankful for this. I certainly can and will use other methods if I feel the need to IM or chat. As I get further into this and take in more info I will search the archives for my answers. Thank you again Brian for providing this wonderful tool in ours and our loved ones long path to recovery. -Betty
Caregiver to Sister, Woodstock, VT - 3/4 tongue removed & reconstructed w/forearm 5/21/04, some in the lymph nodes, neck dissection, brachy radiation in the hospital and now going through 2nd round radiation and to add cysplatin chemo. Stage II-III.
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#2748 06-11-2004 12:38 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Obviously any of you can communicate through ICQ, and there is even a place in your profile to list your information for that. You can schedule your own group get togethers etc. and much more. I am in favor of those of you who wish to communicate real time to do so, after all, once a friendship has started topics that are not really of importance to the board will likely come up, and there is the always present desire for instant gratification...especially when you want an answer that minute. But please don't forget that if you get into discussing information that others might benefit from, it will be lost forever when you quit your discussion, and I think that would be a loss to the future readers here. Many of you have walked the walk and the information that you provide is of great value to others. You are leaving a valuable trail of information everytime that a topic is discussed.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2749 06-11-2004 03:23 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | This place is great! I say we throw this Betty out for starting all this trouble! Sorry, I couldn't help myself, just kidding. | | |
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