#27181 02-10-2005 09:15 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Well now I know...Nose Scope today...
Have been told today need two operations to CURE the probems caused by my surgery. one the trachie has narrrowed my trachea, so they are going to try to laser the narrowed area, (could still return, and good chance they will chip my front teeth, and a small chance the trachie will have to go back!) And just to be different they have damaged one of my vocal cords, so that will need surgery at a later date.. GREAT.. WHO THOUGHT UP SIDE EFFECTS... So it explains my breathlessness and my inability to laugh without choking.. Still no one said red wine had anything to do with it! ! !
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#27182 02-10-2005 10:57 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Oh Helen,
WHAT NEXT? I am so sorry to hear you are having all these problems. Did they ever explain any of this to you beforehand, not that that makes it any better. Did they explain how this laser surgery would work? Is this scar tissue from when the trach closed? How complicated is this surgery and what is your down time? I'm hanging in there for you and sending good vibes your way. Have an extra wine tonight. You deserve it.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#27183 02-10-2005 11:39 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Wow, Helen, sometimes it just doesn't stop! You are in my thoughts and prayers and hopefully these surgeries will be minor and very helpful. Let's both have red wine tonite!
Love,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#27184 02-11-2005 12:52 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Helen, you are so positive. Seeing the red wine at the center of the cloud is just like you. You tickle my funny bone. You are an amazing person, thanks for your positive outlook and message. Will pray for your comfort and support.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#27185 02-11-2005 02:47 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Helen, you truly are an amazing person!! Love your positive outlook!!!Enjoy your weekend! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#27186 02-11-2005 07:52 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | helen, sorry to hear ur having probs it never rains but it pours chin up and stay possitive as u do best regards maz | | |
#27187 02-12-2005 09:18 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks everyone, for your best wishes.
Eileen, no one told me about these side effects, and yes, it is scar tissue that need to be removed, hopefully only a few days in hospital, just hope that it works 1st time and doesn't require a few goes! ! !
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#27188 02-13-2005 10:36 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Helen
You are having a time of it girl.
I think a bucket of Red wine might be in order, it goes without saying that we are all pulling for you and sending you all these great big vibes.
Hang in Helen , its got to get better soon.
Love
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#27189 02-15-2005 08:20 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Helen
You are very positive, it makes all of us smile. Hey girl put a nipple on that bottle and enjoy!
JOAN
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