#27117 01-31-2005 01:43 AM | Joined: Oct 2003 Posts: 18 Member | OP  Member
Joined: Oct 2003 Posts: 18 | hey yall its been a while since i have been here but i think im in trouble i have a open sore on my tounge, about twice the size of the sore when they found the first to be cancer in the same place its been there now for a month or so and appears to be getting deeper and wider, i am two years out of treatment from the first but now im scared its back, right side of my neck and tounge and my head by my right ear and my right shoulder and arm hurt like crazy, cant eat much due to the pain, i stay tired all the time im going to the doc today i hope and if it is cancer again to be honest im not sure i can handle it again as the first go around cost me losing my wife she said she couldnt handle seeing me going thur it again if it ever came back so much for love huh i reckon i really dont know what to do at this point and time i dont want to talk to my family about it right now and it is hard sometimes to keep it together just curious as to the treatment i went thur the first time with 7.2 rads and the damange that was done weather or not that is even a option i guess the unknown is the worst part,has anyone every made it thur a second go around of oral cancer and could anyone tell me the general outcome of a second round of this stuff i know before i let them do anything im going to have them check me from head to toe to see if it is anywhere else i just dont wont to go thur all this and it be somewhere else and just turn around and come back yet again, well i guess i have cried on yalls shoulders long enough | | | 
#27118 01-31-2005 05:04 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Coop
Well you really have had a time of it , I was so sorry to read your post.
If you search the older posts you will see a few of our members have had to battle the demon more than once. Please don`t give up the fight before you start, I know it must feel as if you have been kicked when you are down but you never know what is around the corner for you.
I am sure you will shortly hear from some of the guys who have experienced what you have , in the meantime, dont give up... Please!!
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#27119 01-31-2005 07:07 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Coop,
I am one of the ones that have made it through 2Xs. I am so sorry you have to go through this again, but fight it you will. Those of us who have already had radiation usually cannot have it again to the same area which leaves us surgery and/or chemo for treatment options. I chose surgery.
Be sure to take someone with you to your appointment. All this is too much to remember all at once and write down your questions and the answers. Ask for a PET scan if you want to be certain that you do not have cancer elsewhere. Keep us posted as to what the dr says. And DON'T GIVE UP THE FIGHT before you start.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#27120 01-31-2005 07:34 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Coop,
you're getting ahead of yourself here! You don't have a Dx yet and it could be something like thrush which could cause the symptoms you have got. Take a deep breath.
They always told me that, as in Eileens case, "salvage" surgery could be performed if necessary. You are seeing an ENT every 2-3 months right? Has everything been normal until now?
Sorry to hear about your wife - for some people it's to just to close to their own sense of mortality and they just can't handle it. I had some very close friends who stayed away until almost 1 1/2 years out.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#27121 02-01-2005 10:49 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Coop:
I live just up the road fom you at Blue Springs. XXXX was my ENT in Tupelo. But now I go to Memphis VA due to the loss of my insurance. Why have you let this thing go this long... Run, don't walk, to your ENT... Of Course you can survive Cancer a second time.
Darrell
Note from OCF: This message was edited to remove doctor name which should only be shared in private emails and not publicly on the board.
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#27122 02-01-2005 11:44 PM | Joined: Oct 2003 Posts: 18 Member | | OP Member
Joined: Oct 2003 Posts: 18 | thanks yall well the hole is deeper than the doc thought,doc did cut part of it out yesterday i should know the results today or thursday,ct was good turns out it wasnt a lympnoid swelled up, doc said he isnt to sure about the hole tho he is a old friend i grew up with and he dont hold back on me and like yall he chewed my rear end out for waiting so long now we get to play the waiting game as im sure yall know is the worst part of it, as soon as i find out i will post on here but it is in the lords hands now and regardless i know he will take care of me | | |
#27123 02-02-2005 09:10 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Coop,
I am really sorry for the anxiety you are going through right now. There is nothing I can say to comfort you because I just haven't been down that road. I am hoping and praying for the best possible results from the biopsy and I pray He will provide guidance and wisdom to your medical team to find the best course of action for you. I also pray for Him to provide you with all the comfort and peace you need all the days of your life.
YBIC,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#27124 02-03-2005 11:17 AM | Joined: Oct 2003 Posts: 18 Member | | OP Member
Joined: Oct 2003 Posts: 18 | IT IS NOT CANCER
i am speachless doc called today said it was not cancer that it has something to do with the radation and from what i gather i am gonna have to have some kind of treatment to be honest i didnt hear much after he said it wasnt cancer i was to excitied, may god bless each and every one of yall in here and only the lord knows how much help yall have been to me and others just like me i do pray for each and every one in here.
maybe one day the good lord will give man the knowledge to get rid of cancer all together with out having to make us go thur so much but till that day comes keep the faith and the lord will help us all thur our troubling times and again may god bless each and every one of yall in here | | |
#27125 02-03-2005 11:37 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Coop, that is excellent news. Guess all of the praying, worrying, concerns, etc., did some good. Congrats on the good news.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#27126 02-03-2005 04:49 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Coop,
Your post made my night. I felt a real rush when I read it, I'm sooooo happy for you.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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