#27106 01-20-2005 02:23 PM | Joined: Jan 2005 Posts: 4 Member | OP Member Joined: Jan 2005 Posts: 4 | Can some tell me how long they last? I just went throught my first rad&chemo treatment last week. First of five weeks. Thank you Scott | | |
#27107 01-20-2005 02:50 PM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Mar 2003 Posts: 251 | Scott, The mouth sores can be a continuing problem. My husband had them through the last 3 or so weeks of almost 8 weeks of radiation and chemo and into the first couple of months post radiation. But there are meds, etc. that your doctor'a can prescribe to help - make sure they know it is a problem.
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#27108 01-20-2005 03:20 PM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jul 2004 Posts: 188 Likes: 1 | Scott, I had some degree of mouth sores from my second week until about 3 weeks after completion of rad treatment. The docs gave me a bunch of mouthwashes to combat the effects. There was their "magic mouthwash" they had me swish & spit every 4 hours. That's the stuff with the Lydocain in it. Nasty but effective for pain relief. The others as I recall were a Nystatin rinse, and another pink one I can't remember. They were to prevent infections and Thrush. I'd encourage you to keep up with the rinses. They really will help.
Good luck next week. Give me a call if you need anything.
Good Health,
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun. It's always something "Adversity doesn't build character, it reveals it." | | |
#27109 01-20-2005 06:03 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2004 Posts: 218 | Scott, I think the severity and duration of these sores varies from person to person. Some people are more sensitive to the radiation and as a result, the reaction is more severe. My sores started at the end of the first week and lasted for about a month after radiation treatments ended.
Chuck is right about keeping on top of the rinses. Plus you should make sure that your pain medications are sufficiently strong to minimize the discomfort. I found a very dilute solution of warm water and baking soda to be helpful between the Lydocain swishes.
Good luck with your treatments - Sheldon
Dx 1/29/04, SCC, T2N0M0 Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions) Dx 3/15/2016, SCC, pT1NX Tx 3/29/16 Surgery
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#27110 01-21-2005 01:36 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 482 | Scott, I didn't really have "mouth sores", just a very sensitive tongue and throat. I can tell you that I still have a very sensitive tongue and throat and I am 11 months after rad/chemo treatment. I just tend to ignore it as much as possible and drink things that don't hurt as much. However, we are all different and others on the board have had a more difficult time of it. And some have had it easier. So hang in there, there is light at the end of the tunnel.
Regards, Kirk Georgia Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#27111 01-25-2005 10:00 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Scott,
The mouth sores usually come from either mucositis, thrush or infection. Each one feels about the same but there are tests for the last two and the radiation oncologist will be able to look into your mouth and tell you the first. All are treatable and the success of treatment really depends on the patient. I struggled with thrush throughout the radiation and for months afterwards.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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