#26451 05-30-2004 04:10 AM | Joined: Dec 2003 Posts: 3 Member | OP Member Joined: Dec 2003 Posts: 3 | Being genetically disposed to oral cancer, I come here asking for an opinion. This morning, I woke up with a burning sensation on the left side of my tongue. It felt like I may have bit it sometime last night and continues to feel sensitive. I looked at it this morning and it appears to look like a very small red ulcer, perhaps the size of a pinhead. I would not normally worry about this but for the color, red. Any ideas? | | |
#26452 05-30-2004 06:25 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Hey Rick46, What makes you genetically disposed to oral cancer? Just wondering. Do you get cancer sores? I get them alot and my hubby gets them some. For me, they begin as a little red sore and then grow some into a white ulcer. Dan's problem was we never knew anything about oral (tongue) cancer so he didn't even begin to check it out for many months. By then it was almost quarter-sized. I still get canker sores and flip out a little when I see them after Dan's experience. However, it was told to us at diagnosis that if you have any sore in your mouth longer than 2 weeks, definitely get it checked.
Hope this helps and God bless, Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#26453 05-30-2004 09:15 AM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | Not to belittle your concern, but you really shouldn't worry about anything which has just appeared. If it is still there 14 days from now, then it's worth a look see. The mouth is constantly full of small benign abnormalities, and most of them resolve on their own without treatments of any kind in that period of time. As to being genetically predisposed to cancer, this cancer does not appear to follow genetic predispostion patterns like breat cancer for instance. 75% of the people that get it, come to it through lifestyle issues, the rest from viruses, and other small contributors to the number. The only genetic predisposition would be a gene p53 defect, and that would be hard for you to know, and would open you up to many other cancers besides oral. If it still there in two weeks and it is the size of a pin head, I would just get an oral surgeon to snip it off and send it for biopsy. No pain, 10 minutes of your time. But odds are that it is nothing to concern yourself with.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#26454 05-30-2004 10:09 AM | Joined: Dec 2003 Posts: 3 Member | OP Member Joined: Dec 2003 Posts: 3 | Thanks all. My mother had oral cancer of the tongue. She died at age 54. I have never been the same since. | | |
#26455 05-30-2004 10:18 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi I'm sure that you have never been the same.. but there is a saying here.. it ain't cancer till someone says it is.. we all get ulcers.. red marks.. toothache.. the hardest thing is keeping your feet on the ground for a couple of weeks to see the outcome.. I would say don't panic but I'm good at panic.. so take care watch and wait.. god willing all will be well prayers... love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26456 05-31-2004 05:09 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Rick,
I am sorry to hear about your mother. I can imagine after that, you have a sense of fear with the sore in your mouth. Try to just keep calm and watch it for a few days. I had cancer of the tongue and I get really scared when something feels strange on my tongue. The doctor keeps telling me to quit that because with all the radiation I had, my tongue will never feel the same. It doesn't help to hear that, though. My wife gets sores on her tongue that she calls swollen taste buds. They look very strange and worry me but they go away in a day or two. The key is the sores that don't go away for weeks.
Take care and try not to worry.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#26457 06-01-2004 01:48 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Ed,
I had that "swollen taste bud" problem as recently as this past week and some related soreness. Sometime they seem to come from some sort of temporary food irritation, but I can't always figure out the source. They're gone now, thank goodness. I still get hypersensitive about things like that, but the two-week rule is a good guide.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#26458 06-01-2004 05:34 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Fact is that most of us don't even notice what's going on inside our mouth. Even professionals like dentists and hygenists (who are paid to look in there) miss things. Once you begin to notice then all of the stuff that Brian mentioned in his post comes into play. Once you've had a good scare then the health of your mouth takes on a whole new meaning. I freaked out once at a salivary gland - I thought for sure it a new tumor - turned out to be a normal part of the anatomy. I'll bet the head & neck guy had a good laugh at that one. Then the stains from fillings and other normal anomolies.
I can certainly understand your fear in light of your mother but I have not heard or read anywhere that oral cancer is genetic. The vast majority of the time (80%) it is environmentally caused by tobacco and/or alcohol. Considering the high incidence of cancer in general - 1 in 2 males and 1 in 3 females. I guess just having a bag of bones makes us all genetically disposed to cancer.
Since early detection is key to better odds of survival you are wise to seek an accurate diagnosis.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#26459 06-02-2004 10:26 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I am sure the otolaryngologist used me for some conference room laughter, too. I begged him to see me the day after my 4 month exam because of what I perceived to be a hard spot in my neck. It turned out to be my carotid artery and it was pumping like mad while I rushed to his office at 7:30 am and got stuck in a wreck 2 minutes from the office with the highway completely shut down 2 cars ahead of me.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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