#26385 05-07-2004 08:53 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Maria
Thank God your results came back clear.. now you know how to things done.. get the rest checked and then you can have total piece of mind..
Take care luv to see you at the reunion
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26386 05-07-2004 02:41 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Helen,
My prayers sure are with you. I am so sorry that Plan B has to happen. I look up to you so much with what you are dealing with. My hubby couldn't talk for 6 weeks during later part of treatments and I thought that was bad. I am so glad you are finding a way of communication anyway. Are they taking all of your tongue? Dan didn't have the flap, but a graft from his upper leg and a little over a third of tongue removal. The neck tumor popped up just three months later...what a surprise that was! It's been a long, hard road and I just pray for healing everyday and that this cancer would be gone. I will add you to my daily prayer time...that God would give you and your husband what you need to heal and be well again.
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#26387 05-07-2004 08:43 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Debbie
Thanks.. am worried about the speech part more than anything.. not sure how my husband will cope for so long.. No the plan is the base left part of my tongue and the left tonsil area.. I am going to take a list of questions when I go back.. my brain went out of gear yesterday
Thanks to every one for the support and messages..
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26388 05-07-2004 10:40 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Maria, so happy to here good results !!!!!!!!And Helen, you know I`m the queen of caring for nrck flaps, grafts, and everything else under the sun............you know I`m looking for an excuse to just hop over there!!!!!! Love and Hugs and Prayers and Incense heading your way..........Love and Hugs, Dee | | |
#26389 05-08-2004 03:22 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Maria
Me Too, I ve been sick lately...
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#26390 05-08-2004 07:03 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I'm happy for you Maria!
Helen, make plan B work for you. You're strong, I can see that in your words.
Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#26391 05-08-2004 03:23 PM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | Congrats, Maria! Good news is really a joy!
Kim
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#26392 05-09-2004 04:25 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thanks for sharing the good news!!!! There will be a email sent to all members of the OCF foundation soon. It will give all the details about the 1st reunion. Good luck on youe visit to your ENT. Welcome to the Oral Cancer Foundation Maria!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#26393 05-09-2004 08:37 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hello Helen , just caught your news...bummer..
will social services send someone in to give you a hand for the first couple of weeks? My daughter lives in Corby..can she help?
Never mind the stiff upper lip thingy...scream loud and clear if you need some support.
lots of prayers heading your way.
marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#26394 05-09-2004 10:51 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Marica.. Yep.. DO NOT like plan B.. got lots of questions when I go back.. mainly how long in the hospital and how long before I can talk even a bit..My Mum will be there for John but she's 80 so I don't want her to have to do to much.. hope the family will help.. he's not going to cope I may just run away and hide.. If he can't manage I can't do this.. Don't get me wrong for a blind guy he's good I get tea in bed and he helps a lot around the house.. he vacs I dust.. but he needs help with hot meals and sorting his clothes and he is going to be bored out of his mind while I'm in hospital... don't know what to do about that one.. may just scream LOUD....
Thanks for your prayers and concern
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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