 
#25925 07-10-2003 04:23 AM | Joined: Apr 2003 Posts: 41 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 41 | I used to post here a few months ago, and haven't in a long time, though I still keep in touch with a few members here, via e-mail. Well, I wanted to update all who knew me on what has occured. I finally had an open biopsy on my lymph node in my neck last Wednesday. The doctor called today and informed me that these enlarged lymph nodes were NOT CANCEROUS!! Yeah! He still feels I need to see another specialist due to the lymph nodes being enlarged bilaterally in my neck, as well as in my chest. But the best news is what I got today, that is is not cancer. Thank god for that. I want to say Thank You to you all for the support you have shown to me in the past and I owed it to you to let you know the "final" outcome. I continue to wish the best for everyone here as well.
Love
Desiree | | |
#25926 07-10-2003 10:56 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Good stuff Desiree!!!!
Way to go girl - so glad you came on to tell us how it's going and the good news.
Love to hear the good things.
Dinah | | | 
#25927 07-10-2003 11:18 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Glad for the good news, Desiree. Thank you for sharing with us! 
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#25928 07-10-2003 04:09 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | That is good news. I am curious though about the lesion on the base of your tongue which was the beginings of your postings. What ever happened with that? Did it ever get biopsied, or did I miss that part?
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#25929 07-11-2003 04:25 AM | Joined: Apr 2003 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 41 | Brian-
In response to your question, they did biopsy the "lesion" on the base of my tounge like 2 months prior to this, and it came back atypical hyperplasia of T and B cells. So, I went to Penn for 2nd opinion and when he looked down my nose/throat with the flexible laryngoscope, he saw no such "lesion" but instead, alot of inflammed and irritated lymph tissue. Maybe the so-called lesion, was never a lesion at all, or what once was, was taken at the first biopsy. The doctor did say he took quite a bit off the back of my tounge, but did not show cancer. That is when it was recommended to me to have a rebiopsy and when I changed facilities. I am thankful if he got what had been there, and that I am through with procedures, at this time. Never know what these new doctors are going to say about the enlarged nodes in my chest, probaby try to diagnose it as some sort of virus, which is fine with me. My anxiety has gotten 100x better just to know I am cancer-free.
Thanks again for all of your support, each and every one of you.
Desiree' | | |
#25930 07-11-2003 06:34 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Desiree,
That is terrific news. So glad things worked out for you. Hope they find out what is causing the enlarged lymph nodes.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#25931 07-11-2003 04:03 PM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | Hi Desiree:
Been wondering about the outcome of your story and I am very glad to hear it is positive. Keep us posted.
Kim
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#25932 07-11-2003 10:43 PM | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2003 Posts: 122 | Desiree!
Congrats on your non-cancerous condition!!!!! This sort of diagnosis is what keeps us ALL coming back....there really IS hope for us all- and I appreciate your sharing your wonderful news. Those of us who have yet to have similar results look forward to "outdoing" you inasfar as getting a 'real' life back!!! :-)
The most valuable commodity for me at least, is FAITH that there can really be quality life after diagnosis....and treatment.....ohmygoodness TREATMENT that you, hopefully, will never go through. In the midst of my treatment, I can only say, "good for you, girl!" and I hope this whole mess that you've been through..... going from doc to doc and being delayed and treated like a 'condition' rather than a human being hasn't scarred you too badly....I rather suspect you're a heck of a lot stronger than you thought you were!!!! :-)
Love and best wishes
Gordon
SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!
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