#25142 12-14-2007 02:47 PM | Joined: Dec 2007 Posts: 10 Member | OP  Member
Joined: Dec 2007 Posts: 10 | Thank you so much for all of your wisdom and encouragement. I have to say, I am a bit emotional with the out-pouring of concern and caring from individuals that have not met me. I am very concerned, as I should be, but it certainly has helped me by visiting this site and gaining knowledge of oral cancer. Thank you, my new friends!! I will keep you updated. I will go prepared with questions and definately take notes since I am sure, I will be quite emotional. I hope everyone has a great weekend. 
Donna
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#25143 12-14-2007 02:53 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Hi Donna,
I am from Summerville and I pray that this is not cancer. You will be in my thoughts and prayers until we hear back from you on what it is.
I was treated at MUSC for base of tongue stage 4 cancer. On my last visit my doc said I was 100% cancer free. Remember we are here to help you with whatever you may need help with.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#25144 12-14-2007 03:43 PM | Joined: Dec 2007 Posts: 10 Member | | OP Member
Joined: Dec 2007 Posts: 10 | Hi Billy. You are in my backyard, always good to hear from a neighbor. I am glad that you are now cancer free. I will keep you updated. I too hope it will be negative. Prayers are always welcome and needed. Have a great weekend.
Donna
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#25145 12-15-2007 01:23 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | dear donna iwish you the best on your test i just finished tx of larnyx cancer in aug rad 7 weeks and 7 weeks of chemo mine was t1- t2 of theright vocal cord iwas hoarse of and on for over a year pcp was just giving me antibotic went to ent had 2 vocal cord stripping first . they came back ok then in june of 2007 the bomb shell came and i also still smoke god it is so hard; if i can help in any way let me know i lucked out with really great drs you will always have a lot of /? but the people on here are great even though i still dont get how to do this very good 
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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#25146 12-16-2007 05:34 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lolita,
Donna sorry to use your post but I have to make a comment to something Lolita said.
LOLITA YOU MUST QUIT SMOKING !!!! IT WILL KILL YOU UNLESS YOU STOP AND UNLIKE CATS WE DON'T HAVE MULTIPLE LIVES !!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#25147 12-16-2007 02:45 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Lolita - Please listen to David. Please!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#25148 12-16-2007 03:54 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | does anyone have any idea how lon g it might take to come back all reports have been good so far
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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#25149 12-16-2007 05:01 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lolita,
Are you asking us to tell you how long we think it might take for your cancer to come back? If that's the case, I doubt that anyone will answer that one.
The one thing I will tell you is that David is right. Give it up. If you don't give up smoking, you do stand a better chance of your cancer coming back. I do smoke cessation counciling in my office and if you would like some phone numbers and web resources, don't hesitate to send me an email.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#25150 12-16-2007 06:27 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Lolita: Try www.quitnet.com Fabulous free support group from when I quit. You get 24/7 support - that plus the patch did the trick. Save your life. Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#25151 12-18-2007 03:03 AM | Joined: Dec 2007 Posts: 10 Member | | OP Member
Joined: Dec 2007 Posts: 10 | Went to the ENT. Said he didn't see anything concerning. Let lymph node was a little swollen but he thought maybe I was feeling more of my carotid artery. If that is true, it's very big and I'm concerned about it. He also indicated that I may have GERD. Only way to find out is to be on Nexium. Re-check in a month. Additionally, he said it could be some strep and said he would put me on antibiotic but somehow I didn't end up with an Rx for that.
I asked for an Rx for Chantix but he said he didn't prescribe that kind of product and I would have to go to my regular doc. What a waste of my time. Now I'm off to my regular doc.
Donna
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