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Joined: Oct 2007
Posts: 71
Tammy63 Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Oct 2007
Posts: 71
What great support there is on this site! My fear is the sores in my mouth/throat and if the skin on my scar in the heck area becomes sore and raw. Any advice to get me prepared?


Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Tammy, there are some very good skin creams for keeping the neck [radiated] areas in good shape. You need to ask your RAD Doc SPECIFICALLY what he recommends you use and you should be able to find lots of good advice here [I hope] by searching radiatiated skin care. Advice we got was: Always go in for the rad tx. with clean skin. Use Aquaphore immediately after a rad tx.,Alovera is also a good skin conditioner [ask your Doc or nurse] Never rub, always pat your skin dry after a shower, drink as much water as possible every day. Remember, your skin is getting burned and must be treated acordingly. As to the "mouth and throat sores issue" , chances are you will have to deal with them. AGAIN, be proactive, ask ahead for meds. to have at home when they crop up. Always tell the Rad Doc or nurse when you start to have any sores. GEt your husband involved with being very educated and proactive about these things also. The better informed and vocal you both are - the better response you will get from your medical team in most instances. To be "prepared for radiation", I would ask for a script- open dated- to be filed the 1st time thrush or mucositis showed up. And I would ask for an open dated script for pain meds after ratiation starts. And I would insist on having a peg tube- I don't see that in your post anywhere.
Please remember, almost all of the people you are talking to on OCF are survivors- keep that in mind as you go forward. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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