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#24616 10-23-2007 02:59 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Hi Lynn - glad you are done with the treatments! I have to chime in here as I am a "closet" Brit - born in Luton, my family came over to the U.S. when I was a small child but all my other relatives are still there!
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#24617 10-23-2007 04:36 AM | Joined: Sep 2007 Posts: 13 Member | | Member
Joined: Sep 2007 Posts: 13 | Welcome Lynn!
I hope you find this website as helpful as it has been to me. I have learned so much and the people are so supportive.
I am a 56 year old Nurse, and I had my right upper jaw and partial palate removed 26 months ago, with a 30 day course of radiation. I just received the results of
my PET scan last Sat., and I am cancer-free. I am so relieved!
How are you feeling? I know that you just finished treatment, and it takes time to heal.
Please keep us posted on how you are doing.
Carol | | |
#24618 10-23-2007 08:35 AM | Joined: Oct 2007 Posts: 8 Member | | OP Member
Joined: Oct 2007 Posts: 8 | Thanks to all you fellow Brits and others for your welcome.
I have been to the USA a few times but only to New York (once), Las Vegas (once) and Florida (11 times my favorite place)
I am struggling at the moment with the dreaded 'thick' secretions which alternatively choke me and make me sick, its probably the worst thing about this. GRrrrrrr.
Love
Lynn
Age 49 SCC Lt tonsil/soft palate with tonsillectomy 18-7-2007, 7-8-2007 left sided neck dissection 3 nodes positive, 22-8-2007 PEG insertion. 35 doses radiotherapy and 2 doses of Cisplatin (3rd dose cancelled due to neutropaenia. Finished Tx 19th Oct 2007 lost 48lbs in weight.
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#24619 10-23-2007 03:13 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Lynn, I can't tell from your signature exactly when[if] your radiation has ended, but the secretions are a struggle for lots of people. What are you getting to help deal with them? Can you get a portable suction machine? It helped my husband alot. Hope the peg is helping you maintain your ideal weight. Please let us know any other issues you want to have addressed as there is lots of experience here. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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