#2442 05-10-2004 06:12 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Friday OCF received a significant donation from Laclede Inc., the manufacturers of the Biotene dry mouth products. It is enough to guarantee the costs of keeping the OCF web site up for the next twelve months, as well as making additions to it during that period of time. This donation will also allow us to pay our extra monthly bandwidth charges, which now that we receive over 13 million hits per month, are getting up there, and also pay for our licensing for the forum software etc. This donation, while something that I have been in discussions with them about for over a year, finally came to pass partly because of my pursuit of them, but mostly because of one individual, Mike Pellico, the owner and CEO of this privately held company. At a time when OCF is beginning to spend funds in areas that encompass TV public service announcements, and contacting new patients and doctors through our efforts to get out the information cards out at the major cancer centers around the US, as well as working with the ADA and others on our dental education DVD to bring dentists up to speed on the screening techniques that they need to know to catch this killer in it
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2443 05-10-2004 06:36 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Brian, will definitely write a Thank You to Mike Pellico, and Thank You and Ingrid for all you have done!!!!!!!!!God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2444 05-10-2004 06:41 AM | Joined: May 2003 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 33 | That is wonderful Brian, I sent him an email thanking him. Even though I do not have oral cancer, my dad did and died from it, and I did find allot of comfort from this board when my father passed away. I think this is a wonderful place for people with this disease and for people who have loved ones battling this disease to come to for support and answers.Packer66 Littlegirl | | |
#2445 05-10-2004 07:25 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Well Brian, what can we say.. you always manage to stay ahead of the game.. you are one awesome dude.. my thanks go firstly to you for your dedication to the OCF and through that to all of us, and secondly to any supporters that appreciate what a worthwhile cause they are supporting.. and hopefully all this work will lead to the goal we all want.. more awareness for oral cancer leading to a decrease in the mortality rate...thank you both
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#2446 05-10-2004 07:32 AM | Joined: May 2003 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 33 | Well Brian Helen said it all, I also thank you and your wife for everything that you's have done. You are truly amzing people.Thank you again Brian and Ingrid. Packer66 Littlegirl | | |
#2447 05-10-2004 08:32 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | I will send Mr Pellico a note. Brain and Ingrid I want to thank you for all you have done regarding this site. I have been a member for a short time but this was the most valuable piece of information I got througth my treatment process. Without your site I would of been clueless to a lot of things. From a business point I have plugged Biotene products in many posts and more obvious information on the site from them will be helpfull.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#2448 05-10-2004 08:49 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Brian, you and Ingrid, need Kims pompoms, we all need pompoms........you are great folks. This Board got me throught the darkest times when I had no one to share my fears with, I `ve found great friends, and been able to share Packer`s story and hopefully help others.........You and Ingrid just prove what life is about !!!! Hugs, Dee | | |
#2449 05-10-2004 09:48 AM | Joined: Apr 2003 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 30 | Brian, ditto to all that has been said. The OCF has been such a comfort and support zone, thanks to you and Ingrid making it possible. Yes, I will send Mike Pellico a heartfelt thank you.
Becky Ray | | |
#2450 05-10-2004 10:32 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Note sent. And thank you, Brian.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#2451 05-10-2004 11:17 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 |  Thankyou Brian and Ingrid. This site gives me so much down here in Oz. Full range of Biotene is available here. Will send. Helen
RHTonsil SCC Stage IV tx completed May 03
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