#24475 10-06-2007 09:12 PM | Joined: Oct 2007 Posts: 1 Member | OP Member Joined: Oct 2007 Posts: 1 | I have squamous cell carcinoma in my tongue and tonsils. I've been looking at multiple types of therapy, cures, and research.
I've heard of things like tree bark, immune system protein, and all of these things.
What are my possibilities? | | |
#24476 10-06-2007 11:53 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Death if you follow non conventional "treatment". Get to a comprehensive cancer center (CCC) immediately.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#24477 10-07-2007 05:02 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Bruce SCC is an evil aggressive form of cancer,and it took my husband from me at the age of 44 in a matter of weeks. Dont prat about get to a hospital like yesterday.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24478 10-07-2007 11:09 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Conventional medical treatment can work Bruce. I am nearly 5 years out and doing fine. Follow Gary's advice for the best outcome. Let us know how you get on, best wishes from Helen
RHTonsil SCC Stage IV tx completed May 03
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#24479 10-07-2007 01:06 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Keep us posted as to your progress, Bruce....we're all behind you....whatever decision you choose to make.......
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
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#24480 10-08-2007 12:39 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | You need, as Gary says, a comprehensive cancer center, which takes a multidisciplinary approach to each case, bringing the expertise from a variety of specialties to each treatment plan. That's particularly important for head and neck cancers, which can affect so many critical functions (eating, breathing, talking, etc.). Several well-regarded head and neck cancer centers are not far from you -- VCU (right in Richmond) and UVa in Charlottesville. And you're just over two hours away from Johns Hopkins , which US News ranks as #3 in the country for cancer and #1 for ENT. Get on the phone to one of them. -- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#24481 10-08-2007 04:39 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 65 | If you spend enough time trying to digest everything that has been touted on the web as a "cure for cancer", all the legitamate research about options and current therapies, comparing people's contradictory conventional treatment modalities (we are all unique beings with different degrees and locations of disease), you will expend enough time for this disease to go beyond a point at which you might rid yourself of it. The only choice you have right now which makes any sense, is to choose the best multiciplinary cancer center that you can get into, and get your butt to them. The experts there will, with their far superior knowldge and experience base, determine what avenue of treatment is best for your unique situation based on thousands of patients treated before you, and you will put yourself in their hands as your best option. If you are seeking out tree bark and more similar fringe ideas to cure yourself, you are wasting valuable time exploring things which have no proven peer reviewed efficacy, and during that time while you are trying to avoid conventional, proven methods for staying alive, let the disease prosper and grow to a point at which the morbidity associated with your treatments will be greater, or your chances of survival will be lesser.
If you wait long enough you will not have any choices. This is the cold reality of cancers and their successful treatment. Do not let your fear of treatments you have heard about take you down a path that seems less taxing, that in the long run will not bear a positive outcome. The treatments are tough, but they are only one part of your life that will be tough. Life is not a guided tour. You have to make good choices to navigate its many pitfalls, most not within your control to forsee, and still survive.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#24482 10-08-2007 06:27 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | If you can get into Johns Hopkins, go for it. They are awesome, along with many other facilities in the country. Just get yourself to one of them to get the proper treatment. If you don't, the outcome will be as good as the facility you decide upon. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#24483 10-09-2007 06:30 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Jul 2005 Posts: 207 | Ditto to what all have said.
Bruce, the treatment is not fun. But it works. Apricot seeds, etc. will do nothing. Get to a treatment center ASAP.
I was lucky and found mine early. You need to realize what this crap can do.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#24484 10-09-2007 10:06 AM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bruce:
Please go get treatment. I know its scary and I too would have rather done anything except the regular treatment of radiation and chemo or surgery.
This is a deadly disease if it is not treated. I am 2 weeks post radiation and chemo which I know have saved nmy life.
Good luck to you and keep us updated. You will find alot of help and support on this site. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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