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#2433 05-07-2004 08:45 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | OCF has just hit 1300 members! This site has really helped me.
Good news is word is getting out!
Bad news is there are 1300 members that have had to deal with oral cancer.
Thanks to everyone for their support!
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2434 05-07-2004 09:25 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | You would think with that many members we could get more than 50 to meet in Las Vegas!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2435 05-07-2004 09:53 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | I know Ed, I`m thinking the same thing. I mean, lets have a BIG PARTY !!!!!! HUGS,Dee | | |
#2436 05-07-2004 10:01 AM | Joined: Apr 2004 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 33 | We should try to get sponsors to offset some of the costs -- maybe sponsor a reception or show night. How many of us have had to live on Boost or Ensure while going through this? Or used any of the other many products geared to those of us who still can't chow down on a juicy steak. | | |
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