#24264 09-06-2007 04:45 PM | Joined: Sep 2007 Posts: 2 Member | OP  Member
Joined: Sep 2007 Posts: 2 | We just returned from Baltimore, took my daughter to John Hopkins, and wanted to introduce myself. My daughter tells me this board and all of you are her lifeline. For that you have my eternal thanks!
Will keep you all updated on her.
Bonnie | | |
#24265 09-06-2007 04:51 PM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Bonnie
Welcome! We're all in Minnie's corner, hoping for a great outcome to her latest battle. Many of us have taken great inspiration from her wisdom and courage.
We're here for her, and for you. Just call out and someone will answer
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#24266 09-06-2007 05:02 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Bonnie,
Minnie is a true inspiration to us all.
Minnie, her family and you are in all our thoughts and prayers.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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#24267 09-06-2007 08:19 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi mom!!
I told you all these people were great. Thanks to everyone that responded to her, she will need some support the next few months as she'll be my primary caregiver.........hubby has to work as we all know. Mom was there for my first trip down cancer lane and she's walking right beside me again this time. My road is so crowded I might have to ask for a double lane to fit everyone in my family..........and all of you.
More info to come. Know that I think of you all every day. Thanks for all the private emails, they lift my spirits.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#24268 09-06-2007 08:27 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bonnie
Welcome. I know you were always there for Minnie the first time, and I know how much she appreciated that, so look after each other.
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#24269 09-07-2007 01:54 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hello Bonnie,
Nice to meet you! Your daughter will be in great hands, so many people in her family to love and care for her. I think having her mom there with her has to be the best gift of all! Must we never forget, mom's are angels in disguise.
You are all in my prayers.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#24270 09-07-2007 02:21 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hi Bonnie,
How lovely for minnie to have her mum as well as all her daughters.
You all sound so lovely and truly deserve each other.
Thank you for introducing yourself, we're all thinking of you all,
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#24271 09-07-2007 11:30 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Bonnie....I am sure you must be just as awesome as your daughter! I had the pleasure of meeting Minnie at the Oral Cancer Walk she organized in Va. Beach a few years back. I might get the chance to meet you, I live in Baltimore and am hoping to visit with Minnie at the hospital.
Take care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#24272 09-07-2007 01:42 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Bonnie, How wonderful that Minnie has you by her side on this path. You have an amazing daughter who has helped so many people here, we are all hoping we can help in any way possible in return. Please keep us updated and come here to ask questions whenever you want.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#24273 09-07-2007 01:42 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Bonnie, I'm so glad that you and your granddaughters are able to be with Minnie. She's such a special person and we are all pulling for her. Minnie has been so supportive of so many people, including me. Jack is in a clinical trial at Hopkins and they're a wonderful facility. She's in good hands.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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