#23912 07-26-2007 03:17 PM | Joined: Jul 2007 Posts: 1 Member | OP Member Joined: Jul 2007 Posts: 1 | Hello all. I was diagnosed with tongue cancer when I was 27 years old. I had surgery and three months later I discovered a tumor in my neck. I had a radical neck dissection followed by radiation therapy.
It has been 11 years since I finished my treatment at SKCC in NYC and I am fine. I have my paranoias and go to check ups more than I need but nobody could say by looking at me that I went through all that. Unless of course they get really close and look at the scars in my neck. It took me a while to improve my speech after the partial glossectomy but I speak well although there was a change. I have limited movement of my left arm and sometimes I get ugly spasms between my neck and my shoulder, especially during periods when I don't work out.
I met two other young women that had cancer but they both died unfortunately. I guess I was very lucky because my cancer was caught in time and because I was treated in such a wonderful hospital by a brilliant doctor who did a marvelous job on my neck. It was quite an experience and it certainly changed my life and my perspective. | | |
#23913 07-26-2007 04:43 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Veron - It is so encouraging to hear such a positive outcome. Thanks for sharing your story with us. My son is a little over 7 months post treatment and doing very well, although he also gets the neck spasms. He's been trying to include foods containing potassium to help with that. The was a post recently about the success of Botox to eliminate the neck spasms. If you haven't already seen it, it is under the forum topic "After Treatment Issues" Just click on that and then go to the topic " Positive response to Botox injection". So glad you've joined us.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#23914 07-26-2007 05:35 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Veron, thank you so much for posting about your 11 years, thus far, survival of this terrible cancer. For the many newly diagnosed people who come here, it is a bright ray of hope to hear from people who have lived very well so many years beyond treatment. Congratulations, and I wish you many decades more. When I was having rad, I mentioned to the doc that I planned to live to be a feisty old woman of 87. His response was "Why only 87?" and I think he had a good point. Thanks again for your hope-giving post. | | |
#23915 07-26-2007 07:02 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | Veron,
Thanks for sharing your story. It is great to hear how well you have done. Like Joanna said you are an inspiration to others here that need to hear stories like yours.
God Bless & keep posting Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#23916 07-27-2007 02:13 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Veron, thank you so much for sharing your story. We definitely need to hear good news like that. Thanks for posting....Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#23917 07-27-2007 02:18 AM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Vernon,
Thank you for the 11 year update...what a wonderful thing to read!!!! Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#23918 07-27-2007 06:29 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Thanks for reinforcing hope, 11 years is great.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#23919 08-06-2007 09:45 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2007 Posts: 35 | Good to hear from you...as a recent survivor myself I would certainly attest to the benefits of early detection....and for that I really ought to thank my wonderful fiancee....if it wasnt for her..........
Now I am back at work after a month and pleased to I hope be of some help to people here too!!
Take care and may you stay cancer free!!
Dx:06/08/07 SCC left Lateral tongue Stage I/II Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker 07/17/07 CLEAR MARGINS!!! 05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10 04/07/11 Lump on neck.....ENT on 04/12/11
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#23920 08-06-2007 12:52 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2007 Posts: 163 |
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#23921 08-07-2007 11:35 AM | Joined: Sep 2006 Posts: 75 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2006 Posts: 75 | Veron Thats what I like to hear. I had the same thing. Just had all my teeth pulled. My right arm is messed up alittle, but can still pick my nose. This cancer brings so much doom and gloom it was very nice to hear your story.
Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
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