#23732 07-10-2007 09:32 AM | Joined: Jul 2007 Posts: 30 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 30 | Hello, My first day on this forum. A little history....
5/19/07 - My wife Kathy noticed a lump on my neck as we were driving home from our son's graduation in Charleston SC.
5/30/07 - Family Dr. appointment (my regular Dr. was on vacation so I saw another)- try some meds to see if it goes away.
6/8/07 - back to Dr., lump still there, try some other stuff
6/19/07 - appointment with my regular family doctor, he orders CAT scan and makes appointment with a surgeon.
6/19 - Had CAT scan
6/21 - Met with surgeon,set date for lump removal
6/22 - Prep work done, EKG, blood work, etc
6/26 - Lump removed, looks like infection, but test results show cancer in the removed lymph node
7/3 - Had PET Scan done,mask for radiaion made and met with oral surgeon
7/4 - Radiologist called and said a "hot spot" was found at the base of the tongue
7/5 - Biopsies taken, 5 teeth pulled
7/9 - biopsies confirm base of the tongue, SCCA/
T-1 cancer
7/10 - Waiting for mouth to heal to start treatment.
I am 56 yrs old, non-smoker, work out daily, social drinker.
Bruce
Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
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#23733 07-10-2007 09:52 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Hey Bruce,
Welcome to the site my friend. You will find answers to your questions here and the members here are here to help you along the way to your recovery and survival.
I am from Charleston SC. Are you from SC and where are your treatments going to be??
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#23734 07-10-2007 10:02 AM | Joined: Jul 2007 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 30 | Billy,
I actually live in Green Bay WI. We were in Charleston for his graduation from the College of Charleston. Treatments will be here in Green bay.
Bruce
Bruce
Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
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#23735 07-10-2007 10:13 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | Hi Billy, you have come to the right place. Lots of good people to help you through this ordeal. Your senerio almost sounds like my husbands. Only his was in the nasalpharynx. My husband found his lump on his neck by shaving one morning and the rest is history. Please know we are all here to help when you need it. Good luck to you.
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#23736 07-10-2007 10:19 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Bruce, Welcome to this site. There is so much information and support here for you. Do you know what the plan of treatment is for you? Whatever questions you have just ask them, everyone is here to help. I know this is all so overwhelming, but you will get through this. Take care and keep us informed. Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#23737 07-10-2007 10:52 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Welcome Billy. Having recently joined this site myself you will find a lot of help, advice and information here.
Right from the start I have recieved a lot of support from people here.
Thanks and good luck with eveythig
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23738 07-10-2007 11:44 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Billy, If I were you I would get tested for HPV. I am almost certain that you will test positive.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#23739 07-10-2007 11:57 AM | Joined: Jul 2007 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 30 | Hey David, I suspect you meant the above for me, Bruce, Billy answered me and I answered him and I think people are getting our names mixed up. It really doesn't matter... I will ask tomorrow about being tested for HPV. David, I also emailed you, did you receive it? Bruce
Bruce
Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
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#23740 07-10-2007 02:32 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Bruce: Welcome! You have certainly come to the right place...this forum has been the greatest blessing to us in our few weeks since husband's diagnosis.
LOVE Charleston! Our oldest son graduated from The Citadel in '92....we went down to Chucktown every chance we got during those 4 years and since! Wish I was sitting at 82Queen right now!
Best of luck to you! Hang in there...we're all in this boat together...Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#23741 07-11-2007 12:40 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Bruce, Billy, what's the difference?
Yea Brucey I got your e and sent you one back.
Your in good hands on this site so welcome.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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