#23719 07-09-2007 02:16 PM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Back at home now....it seems that everything went well. My surgeon took about a centimeter chuck out and we are now just waiting for path results to see if we have clear margins. It is very uncomfortable but is very deifinitely controlled...tylenol w/codeine oral suspension which I am able to handle and along with ensure for food. I am ableto talk albeit with a distinct lisp now!!
Thank you all for you thougts and prayers we much appreciate it!!
Christopher
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23720 07-09-2007 02:44 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Christopher,
Glad you're doing well. Did they do the frozen sections? It seems like they didn't, if they are waiting for the path results.
If one cm did it, that's great and the healing should go pretty quickly.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#23721 07-09-2007 04:48 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Christopher,
So happy to hear that you're home and doing well. Let's hope for stellar path reports and than you can be on your way to healing.....and getting on with your many years of life left to live!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#23722 07-09-2007 07:41 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Glad you are home, Christopher, and that everything went so well! Hope you continue to get good reports!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#23723 07-10-2007 05:20 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Very glad to hear you are home and doing well my friend. Please keep us posted on the path reports.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#23724 07-10-2007 10:55 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Well, i'm back up again for some drugs and a little supper...such as it is!!!
Had a scrambled egg this morning which actually worked pretty well....tried some pudding which didnt!
The numbness on my tongue seems to be going down as does the swelling a little. Obviously with the numbness receding it makes the pain just a little higher, but we are very definitely staying ahead of that....
I am talking but with a definite lisp and if i talk too much it hursts after a while!!!
Take care all and I will keep you all informed as I go forward!
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23725 07-10-2007 02:34 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Christopher: You will be in my prayers tonight...I hope that you rest well...keep us up-to-date on your progress!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#23726 07-10-2007 03:24 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Chris,
Every day gets better !!! Glad to hear you can eat somewhat ! I lived on italian ice !!
Hope your path comes back good ..thinkin of you !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#23727 07-11-2007 01:52 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Bad night last night!! Guess I had to have at least one!! Woke up around 3am in searing pain from my tongue...tried to hide it as I guess you can imagine! Woke my fiancee up and took a little extra meds and Janet helped me relax some. I feel so lucky to have her beside me through all this.
Numbness has pretty much left my tongue, and swelling has started to go down a little too.
Take care all
Christopher
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23728 07-11-2007 09:37 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Chris...what have you found out about your margins and your pathology report? I have my fingers crossed for you!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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