#2324 04-19-2004 02:03 AM | Joined: Feb 2004 Posts: 9 Member |  Member
Joined: Feb 2004 Posts: 9 | Dear Michelle,
I, too, am so sorry for your loss and for Breanna's as well. I lost my mother to cancer when I was only 3, so I have experienced things from her stand point. My first bit of "advice" to you is to be sure she understands that it wasn't her fault. As silly as that may sound, kids, especially young ones, believe the world revolves around them. I believed for a very long time that my mother's death was somehow my fault. And, be sure to talk to her about her mother. My family didn't want to talk about my mother in front of me for fear of upsetting me. But that's all I wanted, to hear about her. As I got older, I started asking more and more questions and eventually they started talking again and realized that I needed that to help me go through the grieving process. I hope you will find some comfort in knowing that you still have a piece of your sister with you, in her daughter. It just doesn't seem fair to be left behind, but as Dee has said, we are left here to carry on the fight. I pray God will comfort you and carry you through this dark time in your life. Time does help the pain and it gets more bareable as time passes. Try to remember the good times with your sister and focus on them. I hope my rambling is of some help and comfort to you. Penny | | |
#2325 04-19-2004 05:05 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Michelle,
I am truly sorry for the pain you are experiencing now. I lost my mother to cancer in 2000 and your news reminds me how terrible this disease is to all of us. The roughest part of cancer is seeing the entire circle of family and friends that also suffer. My heart goes out to you and Breanna during these most difficult times. I pray for God to comfort you and your family and to provide all that you need.
I know words can not ease the pain right now but I do want you to know that Marcy saw the face of Jesus. Your reward as her loving caregiver will be special, too! I will continue to pray for you and your family. May God Bless all of you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2326 04-19-2004 07:18 AM | Joined: Apr 2004 Posts: 18 Member | | Member
Joined: Apr 2004 Posts: 18 | My prayers are with you at this time.I pray for love,faith and strength to carry you and your family through this terrible loss and pain.May God contiune to bless you and your family and know that your sister is in a much better place than we are now,I know that doesnt ease the pain,but time will help I hope.
Blessings to you | | |
#2327 04-19-2004 07:33 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks for sharing your pain with us.. I know that it cannot have been easy.. that posting it here would be the final part of your journey together.. BUT please don't leave us, we are all part of a big family.. and that includes good and bad times to share..
Love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#2328 04-19-2004 01:29 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Michelle,
My heart really goes out to you! I will pray for you and Breanna to stick together throughout this healing and grieving process.
Marcy is out of pain and suffering now and she has her tongue back!!! She was full of courage and very brave for her daughter and her wonderful family.
Thanks Penny for your wisdom. I'll share this with my husband for my daughters.
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2329 04-20-2004 12:24 AM | Joined: May 2003 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 33 | Michelle, I am so sorry for your loss, you are in my prayers as well as Breanna. I know what you mean about nothing feeling real, when my Dad died nothing felt real, nothing at all. I know he is gone and I have been mourning him ever since, but in all honesty I don't think it has really truly hit me yet. Just know that your sister was very strong and that she is with God now and she is not suffering anymore. She will always be with you, Breanna and the rest of your family, she is a beautiful angel now. May God Bless you, Breanna and your family and help you get through this horrible time. Packer66 Littlegirl | | |
#2330 04-21-2004 08:21 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Michelle,
I am so sorry to hear of your loss. There are no words I can say that convey my sorrow for you and your family. Please know that your love for Marcy was expressed in your post's. She was lucky to have you as a sister.
As Gary once said "These kind of post's really piss me off" I hate to see cancer win. I take some comfort in knowing Marcy is no longer suffering.
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#2331 04-25-2004 08:06 AM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Dear Michelle, My thoughts and prayers go out to you and Breanna as well. It hurts that the fear that grips our soul for so long turns into unbearable sadness when we fight sooo hard and are still left behind. But take comfort knowing Marcy is no longer in fear and pain and that she IS here in our hearts and she will let you know somehow...and if you haven't seen or felt that yet... you will.
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#2332 04-25-2004 08:44 AM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Dear Michelle, My thoughts and prayers go out to you and Breanna as well. It hurts that the fear that grips our soul for so long turns into unbearable sadness when we fight sooo hard and are still left behind. But take comfort knowing Marcy is no longer in fear and pain and that she IS here in our hearts and she will let you know somehow...and if you haven't seen or felt that yet... you will.
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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