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#23109 07-01-2007 01:48 PM
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Dear LJ, the role of caregiver to the person you love has smacked you square in the face! And the emotional rollercoaster of dealing with all of this has,no doubt,worn you out.[you are not alone].Keep reminding yourself that you have been on this journey with him every step of the way and your fears, worries, sleepless nights, nursing challanges, household duties, etc., etc., have made you stronger AND very tired. I remember, long ago, watching a t.v. special on people who were determined to climb to the top of Mt. Everest, and wondering why the hell anyone would do that! The answer came after my husband's battle with this cancer. You do it because it's there. Hang in, LJ, we are pulling for you both. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#23110 07-02-2007 04:56 AM
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ladyjoe Offline OP
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ok back from the Drs. Thanks so much Amy for your words. You will never know how much they are appreciated. And if I haven't said it before I am so sorry for your loss. I bet you were wonderful to your husband.

Everything was a good report bp ok, heart ok ,blood work ok, his throat is still very raw. he even gained 3 lbs. I told the Dr. must be all the chicken broth! We have decided not to have the last 2 chemos. The Dr. was ok with that as he has completed the first regimine that was prescribed and these were just additional.The first words of hope I heard from my husband was "Dr.I am ready to start to get better now"! So... heres to a good day.


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
#23111 07-05-2007 05:18 AM
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ladyjoe Offline OP
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We are still having a rough couple of days. Our son came in from Va. for a few days. It was hard to watch his reaction to my husband. First time he has seen him with no hair and lack of enthusiam. Though he did get him to smile a few times. So all and all it was a good visit. hoping he can just turn that corner and have a few good days in a row.


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
#23112 07-05-2007 01:17 PM
Joined: Apr 2005
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LJ, here's hoping for a couple of good days for both of you. Amy in the Oz


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#23113 07-06-2007 08:18 AM
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ladyjoe Offline OP
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Went to have our pet scan this morning. He vomited this morning before we went and again while taking the test. I don't know what it could be. He is on Augumentin for an infection with his peg tube so I am thinking it could be that medicine. So I decided not to give it to him today and see what happens. He is just so miserable. Sometimes when I read on this forum of people just starting out my heart breaks for them and I can't even respond because I know the road that lies ahead. But we have been to hell and are climbing out of the pits inch by inch.


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
#23114 07-06-2007 08:46 AM
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I couldnt have said it better myself LJ. We have been to the brink of hell and back. And you are right again, inch by inch we will all get out of this hole that we seem to be stuck in.

They gave me some different anti-biotics yesterday because they think I had an allergic reaction to Augmentin. I broke out in hives so they put me on something new. I get up today having a hard time swallowing. I figured it was the "wad" of crap I always feel but they want me to come in and be seen before taking anymore so I guess it off to the ER. Geez, does it ever end???


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
#23115 07-07-2007 04:54 AM
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ladyjoe Offline OP
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Billy, hope you are feeling better, what were you on the Augmentin for? Hubby has not vomited since I stoped the meds. Actually he even asked for something to eat last nite. He had 4 bites of mashed potatoes. First he has eaten by mouth in a week! (Thank-you Lord)Seems to be ok so far today. hoping for a good week-end.


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
#23116 07-07-2007 02:12 PM
Joined: Jun 2007
Posts: 510
"Above & Beyond" Member (300+ posts)
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Billy: Follow up and let us know how you're doing..by the way...what area of SC are you from? You are in my prayers...Lois in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#23117 07-08-2007 03:34 PM
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ladyjoe Offline OP
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We had a good week-end. This is the first time we have had 2 1/2 good days together! Mucus is finaly subsiding. Sleeping better and ate something small 3 days in a row. So maybe he turned that corner we talk about. I am grateful for any day that is with out pain. Throat is still a bit sore but even that seems to be subsiding. As he dosen't seem to be complaining to much these last two days. Keeping my fingers crossed!


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
#23118 07-09-2007 12:17 PM
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ladyjoe Offline OP
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ok ,I can't believe my husband ate 1/2 a meatball and 1/2 cup of pasta with a teaspoon of sauce. I was just thrilled! He said it tasted ok but was so excited he actually ask for it. Thankful for small favors!!!


CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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