Anyone dignosed with tonsil cancer? I have finished 35 rad treaments several months ago but still have lotsa question.

no i had tongue cancer i prayed alot that helped me and my husband ,kids and grandkids r still hanging in there with me i hope after all this u will beable to sit back and take it easy for a bit. i was very sad too i still get that way when i can't talk right sometimes because part of my tongue is gone but it's ok i'm hanging in and u will too .i'm in akron ohio
lynnlynn

Glenda
I was diagnosed and treated for tonsil and neck cancer in 2006. I completed treatments in November 2006 and I am currently in recovery mode.

I am still experiencing side effects from the treatments and looking for some answers as well. But I will attempt to answer any of your questions that I can

joe

i am operating from my wife's page, brendaf. my name is sam. i am not a whiz with a computer. i was diagnosed with tonsil ca but it took them almost a month to find it. a lump in my neck started the ball rolling so to speak. i had 37 radiations and 7 chemos in march/april 05. i was stage 3. they tell me it is different for everyone but i am sure there are more similarities. over and out

Hi Glenda, there's a lot of tonsil cancer patients here including my husband Jack who completed chemoradiation in June. His tumor was caused by the HPV16 virus and is participating in the clinical trial at Johns Hopkins for the vaccine to prevent recurrence.

It took him several months to feel remotely like himself but he feels pretty good at this point. His swallowing got a lot better once he hit the 6 month mark, and he's one of the people who had improvment in dry mouth from acupuncture - it doesn't work for everyone. Are there specific questions you have?

Regards JoAnne

Hi Glenda,

I have tonsil cancer along with soft palate and BOT. Had surgery on 02/13. Starting Chemo/Rad this Wednesday for 7 weeks. If I can be of help, let me know.

Jon

Glenda,

I am a tonsil cancer survivor (3 years). Read below for history.

Please feel free to ask anything. I will be happy to help.

Thanks,
-rh

I had tonsil cancer and I am going through radiation treatments now(33). If I can answer your questions I will and if I can't I bet we can find someone who can.

Jon, I guess we are on the buddy system. I start mine on wed also.

Talbil,

Will send you an email. Maybe we can share our day by day fight.

Jon

Hopefully I will be starting 7 weeks of radiation therapy (with chemo wks 1-4-7) late next week. Had tumour from left tonsil removed 12/14 and left tonsil removed completely 1/29. Firstly I have an exploratory on Monday 3/26 to ascertain jaw movement restriction and interference with tongue nerve.
It is only now as my treatment is nearing that I have learned the art of waiting!