#22187 02-06-2007 05:46 AM | Joined: Feb 2007 Posts: 5 Member | OP  Member
Joined: Feb 2007 Posts: 5 | Hi, my name is Lee and I live in a town called Manchester in the United Kingdom.
I was diagnosed in June 2006 with primary Right tonsil cancer that had spread to 5 of my right neck lymph nodes. I underwent neck resection, 20 radiotherapy sessions and two 24 hour courses of chemo. I am well on the way to recovery, but like most, I am still struggling with a dry mouth. I remain on morphine patches albeit on a very low dose. It has been a real struggle for me and my family, but hopefully I have now beat this awful disease. It is very encouraging to read the threads and to discover other peoples experiences. I am awaiting the results later in the week of a recent MRI scan, so keeping my fingers crossed. Regards
Tonsil Cancer stage IV - involvement of 5 lymph nodes. Neck Dissection, Radiotherapy and Chemo. Diagnosed June 2006
Positively Positive!
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#22188 02-06-2007 08:46 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hello Lee,
Welcome to OCF. Here you will find many answers to questions you may have.
I am guessing you are waiting for a 6 month MRI scan. I hope all will turn out OK for you. We are always a little nervous for the first few scans.
Oh yes the dreaded Dry Mouth. We all share in that one. I use a product called Oral Balance it is by Biotene. I have it in a gel and a liquid. It helps with the dry mouth. I am 1 year out from treatment and still have problems with dry mouth. I do have some saliva, but wish I had more. I keep waiting for more changes every month.
Hope all will continue to improve for you, it is a long journey for us all.
Take care,
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#22189 02-06-2007 10:36 AM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Biotene has a whole line of dry mouth products, toothpaste, sugarless saliva gum, mouth gel, "persistent" mouthwash that lasts a bit longer at night...
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#22190 02-06-2007 11:10 AM | Joined: Jun 2006 Posts: 22 Member | | Member
Joined: Jun 2006 Posts: 22 | Hi Lee,
Nice to hear from someone on the same side of the Atlantic! I am irish but I live in Luxembourg. I have a sister who lives near Manchester though, in Wilmslow.
I hope the MRI result goes well, let us know what happens.
Redser
SCC of the left lateral border of the tongue.Partial glossectomy multiple nodes removed 01/06, T2/N0/M0.1 week Brachytherapy 04/06.Modified Neck dissection 1 node 06/06,negative. New ulcer 11/06,non cancerous, HBO treatment 01/07 to 03/07. 2007-2008 had speech therapy and voice training.OK now!
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#22191 02-06-2007 01:09 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Welcome Lee,
Sorry to see you are here but glad you made it to our board. I hope your scans are all negative.
Tim Stoj
63 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22192 02-07-2007 01:16 AM | Joined: Feb 2007 Posts: 5 Member | | OP Member
Joined: Feb 2007 Posts: 5 | Thanks Everyone. I will report back tomorrow after the scan, hopefully with good news.
I have been using the biotene gel for the last few weeks. Working really well, especially at night.
Lee
Tonsil Cancer stage IV - involvement of 5 lymph nodes. Neck Dissection, Radiotherapy and Chemo. Diagnosed June 2006
Positively Positive!
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#22193 02-08-2007 06:02 AM | Joined: Feb 2007 Posts: 5 Member | | OP Member
Joined: Feb 2007 Posts: 5 | Good News from the Hospital today. Everything looks well and no sign of any recurrence.
Still on monthly check ups, but I can now start to get my life back on track, starting with a phased return to work in the next few weeks. Already joined a gym and doing some swimming. The swimming is giving me an appetite, which really helps.
Thanks for your words of support.
Lee
Tonsil Cancer stage IV - involvement of 5 lymph nodes. Neck Dissection, Radiotherapy and Chemo. Diagnosed June 2006
Positively Positive!
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#22194 02-08-2007 07:23 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Congratulations, Lee. I know the feeling of being able to stop holding your breath. Now you can focus on getting your life back. I like the Lance Armstrong motto: LiveStrong....Take your life back, and don't let this monster take more from you than it already has!!
I'm happy for you.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22195 02-08-2007 11:40 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | griz,
Congrats....when did you finish Tx?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22196 02-08-2007 01:04 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | So glad to hear the good news!! Thanks for sharing with all of us. Such a relief when they say everything looks good. Have a great day 
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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