#21847 01-01-2007 06:01 AM | Joined: Dec 2006 Posts: 5 Member |  Member
Joined: Dec 2006 Posts: 5 | Dear Betty,
as someone who has just completed a very tough radiation treatment 6 weeks ago I can tell you that I was just as afraid as you are, but I made it through and you will, too. And over time your vague fears will be replaced by rational concerns which will lead you to making the best possible choices after gathering all the relevant information.
And that in turn will give you the best possible chances to cure it.
That you have found this site so early after the chock of diagnosis is a very good and even lucky thing. I just found the site yesterday and would certainly have benefited a lot from finding it earlier.
2007 is the year of your cure !
Abraham
age 58, father of four, base of tongue cancer T2,N0,M0 diagnosed in Aug 2006 in Berlin, radiation completed Nov 2006 at MD Anderson, first check-up showed no current cancer to be found. :-)Keeping fingers (and everything else) crossed at all times !.
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#21848 01-01-2007 10:07 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Betty,
I am e mailing a response re what to expect from rad Tx I recently sent another poster. I didn't hold back so if you don't want frankness, delete it before reading.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21849 01-03-2007 01:46 PM | Joined: Jan 2007 Posts: 12 Member | | Member
Joined: Jan 2007 Posts: 12 | Betty: Sounds familiar. Diagnosis was the same for me BUT the good doctor chose to surgically remove part of my tongue and then , ta the same time , did a radical whatever ot my neck to assure the lymphnodes aren't involved. He says that all was clear BUT I am to see him on 1/19. Candidly I believe he is now oging to introduce the Radiation route
65yo DX 10/14/06 SCC tongue StgII. 11/21/06 Partial Glossectomy & radical Neck dissection. TX continues 10/07 recurrence 3 mos rad supplemented by 3 Chemo sessions
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#21850 01-04-2007 03:42 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | RCN,
Where are you being treated? Perhaps you need a 2nd or 3rd opinion. I saw 4 cancer docs before I decided what I wanted done to my body. Remember it is your body and not all cancer docs think alike. Going to a cancer institute is usually better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21851 01-06-2007 04:23 AM | Joined: Jan 2007 Posts: 3 Member | | Member
Joined: Jan 2007 Posts: 3 | Betty, I found out on 12/19/06 that I had cancer. I had lymph nodes removed at that time and they were found to be squamous carcinoma. So far, my doctors have been unable to find the primary source. Like you, I am afraid of the unknown aspects but I feel that the more I learn and begin to accept my near future, the more the fear is replaced with participation. I know it is going to be tough but I also know that early detected cancer of the Head/Neck type are 80-90% curable.
"life is not a rehearsal"
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#21852 01-06-2007 04:35 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Frazitex,
It took 6 weeks from the day they removed a lymph node and determined where my primsry site was. They took out my tonsils and adenoids as well as doing blind biopsies of suspected sites. Yhey found my primary but in a lot of instances they don't find the primary. Treatment is similar and I believe outcomes are as well. Sorry you have to face this.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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