#21257 10-02-2006 03:02 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Just want to introduce myself. My name is Linda and I was diagnosed with cancer of the base of the tongue on March of this year. I have had a partial neck dissection, and have gone through radiation, chemo, and brachytherapy. Finished all of that the end of July. Still trying to recover from all of that. Getting stronger everyday! Pray everyday that the tumor is gone. Just wanted to be a part of the board, hopefully I can help someone with something I experienced, and of course I'll be searching for help from others. Thanks for reading this.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#21258 10-02-2006 03:30 AM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Welcome Linda! Glad you are through it and in recovery. I have only read of a couple people in this forum who have had brachytherapy . Why did they choose that option for you and how did that go? Thanks. JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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#21259 10-02-2006 04:24 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Thank you for replying. As for the brachytherapy, I was really fortunate. The radiology oncologist that I chose to go to (he was closest) just happened to be one of the doctors who perform this procedure. He works out of the Pittsburgh, PA area. I had a hard time finding information on the internet about the procedure, so I assumed it wasn't performed much. It went well, I suppose. I went through radiation and chemo first for 6 wks., then healed for 2 wks, then had the brachy treatments. I had to stay in the hospital for 7 days while I got the treatments. The doctor said he's had alot of good results from this procedure. If you have anymore questions, I'll be sure to answer them if I can. I don't go for my pet scan till Nov. so I'm not sure were I am at this point. I did get a good checkup a few weeks ago, though, he said he couldn't feel the tumor and everything looked good. I took that just for what it was, "Great News"!!! 
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#21260 10-03-2006 05:59 PM | Joined: Jan 2006 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 32 | Hi Linroth,
welcome to this site. I am sure you will find it useful as well as finding heaps of support. People here are truly genuine and bring so much knowledge and different opinions that it can only help. Do you have anyone around you to help got through this chapter of your life??
I am sure we'll talk again
Marie-Lyne
Wife of David, 44yo, SCC-BOT-R) mod. rad. ND in Jan 06. 35x standard RT from Feb-April 06. Recur on L) side same level in Sept 06 with mod rad ND. 1/48 node positive SCC + 1/48 positive micropapillary carcioma consistant with thyroid CA.
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#21261 10-04-2006 05:56 AM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Linda - Thanks for your reply and glad your doctor is pleased with your progress. My husband is not slated for further treatment, but I am just interested in brachytherapy and results. Please keep us informed including how the PET scan goes in Nov. Keep the good news coming!
Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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#21262 10-04-2006 06:52 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda, you said you had base of tongue and you had a PND. Did they find positive nodes before or after the ND? Or at all? The BT, was that at the base of tongue only? I'm just curious?
David
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21263 10-05-2006 06:36 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Just wanted to thank all that replied. So nice to know that you are all out there for me. To Marie, yes, I do have an awesome companion who has been through this the whole time. (he even asked me to marry him after my treatment was all done)!! That's a whole other issue. I also have 2 sons, and a great daughter in-law, and brothers and a sister. The support was so overwhelming that my head still spins from all the love and care that I have been blessed with. To David cpa, I don't understand what you meant by BT. I did have one positve node on the right side of my neck. I really have a story to tell, so I'm going to start another post and if anyone is interested, you can read how this was found. Maybe my story is normal, maybe not. I just feel so blessed by the way things happened. Thanks again for the reply...
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#21264 10-05-2006 08:21 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda, BT stood for Brachytherphy but I have since research it and understand what you meant. I also responded to your other post.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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