#20642 07-10-2006 02:47 AM | Joined: Mar 2006 Posts: 99 Senior Member (75+ posts) |  Senior Member (75+ posts)
Joined: Mar 2006 Posts: 99 | I think it's safe to say your in good hands...MDACC knows just a little bit more about how to treat this than we all do. It's just because you see most people here have chemo, but like you said they caught yours so early which unfortunately isn't usually the case. Sorry we got you nervous. Your at a top CCC so I think you need not question their abilities but always ask questions to put your mind at ease. :p
Kerry/wife of stephenm
StageIV - Base of Tongue T4N0M0
XRT x42 / Taxol and Carboplatin x4
Tx. Finished 5/08/06
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#20643 07-10-2006 11:19 AM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2006 Posts: 82 | I agree with Kerry. MDACC is a great facility, so I am sure they know more than me!
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO
35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
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#20644 07-12-2006 07:14 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | well i went to Dr.Martin (dentist) today, and got some good news...only 3 teeth have to come out on the right side. Yipee! They will not be removing any on the left side, due to no Radiation on that side. Another Yipee!  So back to MDCC on Friday for the removal of the teeth...Im finally eating all the good stuff again (after the tonsils were removed) Here i go again...hopefully this will be alot easier! | | |
#20645 07-16-2006 05:36 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Well the removal of the teeth got put off! Until when? Hopefully Monday or Tuesday! It seems like there is always something...Im at the point, lets get this started so i can get on down the road and start to live again, without "Cancer". I think this is more of a mental thing, than anything else. Getting very impatient with all of this, Waiting.......... | | |
#20646 07-16-2006 08:29 PM | Joined: Jul 2006 Posts: 16 Member | | Member
Joined: Jul 2006 Posts: 16 | Linda,
Are your teeth in bad shape? I thought they didn't remove them unless they thought that the teeth couldn't hold up to the radiation.
Joy
8/2006: SCC, right lateral tongue, well differentiated, superficially invasive. 10/2009: recurrence, rt lateral tongue, surgery, rt mod neck dissection. 2/2010: metastasized node under left mandible. 3/2010: Induction chemo 3 rounds, Cisplatin, Tax, 5-FU. Surg and rad to follow.
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#20647 07-17-2006 02:31 AM | Joined: Apr 2006 Posts: 20 Member | | Member
Joined: Apr 2006 Posts: 20 | My husband is near the end of treatment for squamous cell ca un known primary. He will have had 39 IMRT and 3 rounds of cisplatin. He has a gtube but using it makes him sick so he is drinking shakes. We found Suplimed substi-meal online. It was developed by a md and patient and yeilds 600 cal per 8oz. We mix with a can of prosure and some fruit for over 1000cal. Hope this helps it is $32 for 16 servings and can be ordered on-line. | | |
#20648 07-17-2006 03:23 AM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Joy, My whole life i havent had the best of teeth. And the funny thing about it, I come from a family of dentist! I guess, just some more of that great luck i have. (Haha) Today is Monday, so hopefully i will here something from someone. Just tired of waiting on everyone else...lets get the show on the road!! I cant help but believe, the sooner i do this, the sooner it will be over with and my life starts over again (I know i have to go through "Hell" first...but im prepared to haul butt. Ready...Set...Go!!!  ) | | |
#20649 07-17-2006 03:30 AM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Lauriern, thanks so much for the information, i feel everything i can know going into this, maybe it will just make it a little easier. I hope your husband is doing good, and thank goodness he is at the end of the tunnel...and can see the light. ( looking forward to that, myself ) Thank you again, and God Bless you and your husband. | | |
#20650 07-17-2006 04:17 AM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2006 Posts: 137 | lauriern, thank you for posting this information about the Suplimed and prosure. I just ordered both online, overnight delivery I'd never heard of either one of them (not had I heard about Nestle Nutren) from my so-called 'professional' team of RO's and ENTs. The best they can come up with is Carnation Instant Breakfast (double-barf).
Riley
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#20651 07-18-2006 04:25 PM | Joined: Jul 2006 Posts: 16 Member | | Member
Joined: Jul 2006 Posts: 16 | Linda,
I know how you feel. I am now in Houston, and tomorrow begins the consultations and testing at MDACC. I am psyched up and ready to "haul butt" too, to get back to my "regular" life. But as my DH says, sometimes you gotta put your life on hold and take care of yourself first. Hang in there.
Joy
8/2006: SCC, right lateral tongue, well differentiated, superficially invasive. 10/2009: recurrence, rt lateral tongue, surgery, rt mod neck dissection. 2/2010: metastasized node under left mandible. 3/2010: Induction chemo 3 rounds, Cisplatin, Tax, 5-FU. Surg and rad to follow.
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