Hello Steve H,
Welcome to the forums.
Sorry to hear about your new journey into chemo and radiation therapy.
I hear tonsillectomies are often quite brutal too. I hope you are recovering very well from that ordeal and making daily progress.
If you don't see too many replies on here with folks with similar experience as you, you can try the Head and Neck group on Reddit.
The Oral Cancer Support forums have lots of great archived experiences of people for the past few decades, and are readily searchable.
I tend to think of the things posted on these forums here a bit more self-regulated and moderated than some of the posts on Reddit, but they seem to be pulling in more active daily users.
I just saw a post on there today that some Head and Neck doctors from the Mayo Clinic are going to be doing an open forum session on Sept 2 I think it was, where anyone could ask them questions. One I believe is a surgeon, the other a radiologist.
So its not just lay people, but solid medical information...just have to be weary of the source. Lots of upset family members and people not necessarily privy to what all the doctor is telling the patient directly...that kind of thing, people kind of reaching out in desperation.
They do moderate there too and say things like none of us can answer those types of questions, you (or the patient) needs to ask their doctor to explain _________ why.....
If you haven't familiarized yourself with the Forum Search bar in the upper right hand of the forum windows, you may want to do a few searches for tonsil cancer, tonsillectomy....You can try direct messaging individual posters with private messages if you like too.
I hope and pray your recovery from the tonsil surgery goes well and your treatment plan comes together with excellent results, and limited side effects , and rapid healing from those too.
Best wishes,
R/
CQ
