Hi All,
My first post was in response to someone why had a similar diagnosis to mine, but I read that it's better to introduce myself in a separate posting.
Here I am. 57 yo Male with a 15 year history of Oral Lichen Planus who recently has tongue surgery to remove some lesions. The Pathology report came back with a result of PVL (proliferative verrucous leukoplakia) as a likely cause (not definitive). But here we are, 3 months later and a new lesion which needs to be removed. I'm happy this one is not on my tongue as I do not wish tongue surgery upon my worst enemies!
Worried? Yes.
Scary? Also.
Accepting? Not Yet.
Taking this serious? Definitely!
Would be very interested to get in contact with people with similar experiences.
I'm not in the US, so not much point in pointing me to US specific treatment centres (although I know you mean well!). I think my oral specialist knows what she is talking about!
Back to see my surgeon in just over a week to discuss how to remove the new lesion. Fingers crossed it's less serious than I currently anticipate!
Great to see so many people here reaching out with a helping hand or sending some positive fibes!
Take care all!
Iwan
