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#202281 09-23-2025 03:37 AM
Joined: Feb 2012
Posts: 40
Likes: 4
Contributing Member (25+ posts)
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 40
Likes: 4
I guess I'm considered an old timer since I've survived 21 years.

I wanted to discuss an issue related to radiation ☢️ the gift that keeps giving.

I am experiencing radiation fibrosis on my right neck which was irradiated.

Has anyone else gone through this?


DX SCC T3N1M0 R BOT 10/04 135lbs
TX Hemi-Gloss 11/04
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TX 01/05 G-Tube,PortCath,6wks chem+6wks chem& IMRT,Max dose
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DX femoral hernia 09/09,repair 10/09 94lbs
HBO 11-12/10
11/10 All teeth out,05/11 dentures
DX hypothyroid,04/13
DX inguinal hernia,repair,04/15 127lbs
DX cachexia (CACS),03/16 98lbs
DX EPI, TX PERT,10/18 115lbs
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DX iron anemia,02/19 118lbs
TX infusions,04-06/19
DX calcified atheroma carotid
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Joined: Aug 2020
Posts: 184
Likes: 62
Assistant Administrator
Senior Member (100+ posts)
Assistant Administrator
Senior Member (100+ posts)

Joined: Aug 2020
Posts: 184
Likes: 62
Hi Stephen S,

Congrats on 21 years! You inspire me as I am about 5 years out. I had rads to my right neck and mouth and I do experience some cramping and tightness. The cramps are actually under my jaw and can be fairly intense. I have a hard time tracking why they happen some days and not others. Probably hydration, electrolytes, stress...

What are your specific issues - lack of mobility? cramping? pain?

Stay safe and keep the faith,
Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20

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