I have been out of treatment since 2009...I had primary on tongue with spread to neck times 2...Rads and chemo...Over the years I have had so many issues but most recently, over the past 2 plus years I am getting pneumonia every 4 to 6 weeks. It was at first deemed aspiration because I do choke a lot and aspirate. I have done the gamut of tests, had my esophagus stretched done speech therapy and still every 4 to 6 weeks. I do have severe sleep apnea and sleep with a bipod and oxygen. Pulmonology says there's nothing wrong with my lungs, now they are sending me to ent and functional medicine. I tend to know when I am getting bad so I tend to be able to get on antibiotics/steroids before it shows on X-rays now. I still have 5 lower front teeth that are severely decaying and am in process of getting referral to oral surgery to beg him to remove those because I am concerned that the bacteria is causing this.

I am at my Whitts end...Each time I speak with a doc., I feel that I am being treated like I am a crazy person. They can hear the gurgles in my lungs and do not give me problems about meds. I spoke with the pulmonologist about antibiotic resistance down the line and he said just to "switch antibiotics".

Any bright ideas? I am sick and tired of being sick and tired.

thanks!