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#202128 11-12-2024 07:20 AM
Joined: Aug 2024
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Good morning, I was curious if anyone had issues on the first post treatment pet scan. Husband Stage 1 Base of Tongue HPV P16+, 35 radiation sessions, and 3 cycles of chemo finished up about 12 weeks ago. First pet scan showed primary tumor resolved and lymph node, but still has a spot to the right of the primary reading at 4.6 SUV. He is being sent to the ENT for a scope to get a better look. Not sure if its inflammation , residual disease and or a new primary. Anybody have this happen?

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I was diagnosed with stage 2 HPV 16 metastatic squamous cell carcinoma of the lymph nodes and a hidden primary site. I had robotic assisted surgery removing 44 lymph nodes on the left side of my neck where 3 lymph nodes were involved. They discovered my primary site due to a clinical trial using an infusion 2 days before surgery that bonds to the specific ph value of HPV16, and in glows florescent when exposed to a light wave used during surgery. Miraculously, 2 primary tumors the size of a seseme seed were discovered in my left tonsil. So, the surgeon removed both tonsils, the back of my tongue, and a part of my upper left palate. My surgery was done in a different state from where I live and I was returned to my primary oncologist in my home state. Just 5 weeks after my final radiation treatment, I was sent for my 1st CT and PET Scans. It showed an uptake in a lymph node just below the direction (around level 3) and my oncologist was concerned about the findings. Of course, I was scared to death. She sent me in for a ultrasound of the whole left side of my neck. I got the results today and it was inflammation and possible infection my body was dealing with. The findings were that there was no reoccurance, but it does keep my anxiety level very high. I hope that your loved one has a good follow-up. It's unnerving to say the least. Best wishes to you and yours!


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