| | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Hello Folks - I'm scheduled to have this procedure in July and wondered if anyone here has had one, and if so what to expect. This is laser surgery to make a cut in the cricopharyngeal muscle to help stuff go down. My ENT told me that the risk is low - about 1% of patients developed a hole in the esophagus that can be threatening (though I don't think life threatening), and that there can be some regurgitation issues as well.
I'm really hoping this will help with my ongoing (and seemingly worsening) swallowing issues.
Thanks.
David
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | I just noticed that I spelled the procedure wrong.... and hadn't noticed it in the few weeks it's been up!
It is of course CRICOpharyngeal.
The management apologizes for the error.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2021 Posts: 42 Likes: 8 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2021 Posts: 42 Likes: 8 | David. I have read about the procedure. Hope it works, please let us know!!!! I would be next in line!!!!!!!!
Steve
steve
72 yo
SCC 2009
Radiation/Chemo, clear 2010
Active triathlete
NPO and bad voice after 12 years
But doing great
| | | | | Joined: Jun 2021 Posts: 42 Likes: 8 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2021 Posts: 42 Likes: 8 | David, I notice you are from LA, are you going to UCLA Medical by any chance?
Steve
steve
72 yo
SCC 2009
Radiation/Chemo, clear 2010
Active triathlete
NPO and bad voice after 12 years
But doing great
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Steve, sorry, I haven't checked in here lately. No, not UCLA. The procedure is tomorrow, I'll let you know once I'm in the clear.
d
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2021 Posts: 42 Likes: 8 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2021 Posts: 42 Likes: 8 | David, Hopre the procedure went well. I bombed out of the UCLA PRP program. Just too much damage to the vocal chords.
So quiet on the forum these days, very weird to me. So many people need help
steve
72 yo
SCC 2009
Radiation/Chemo, clear 2010
Active triathlete
NPO and bad voice after 12 years
But doing great
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Steve, I sent you a direct message.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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