Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
Joined: Mar 2023
Posts: 9
Likes: 1
Member
OP Offline
Member

Joined: Mar 2023
Posts: 9
Likes: 1
I am ashamed I have not responded or updated. I have resumed solid food for the most part. But I did lose about 8 pounds over the time it took immediately post surgery and now.

I still struggle with numbness in the right side of my tongue. I was so carried away eating one night I bit my tongue pretty bad. It was bruised badly for a couple of weeks. I have learned now to slow down.

Does anyone have a similar numb feeling in the tongue ?

Joined: Aug 2020
Posts: 142
Likes: 34
Assistant Administrator
Senior Member (100+ posts)
Offline
Assistant Administrator
Senior Member (100+ posts)

Joined: Aug 2020
Posts: 142
Likes: 34
Dear Another Journey -

I can not feel the right half of my tongue and I never will but it was removed and rebuilt with flesh from my forearm (partial glossectomy). Did you have that procedure or a piece removed? Glad you are eating food again. It took many months for me to learn how to manipulate food again but I also lost most of my saliva in the radiation treatment. Eating in public was an adventure but now 3 years out I don't even register it 99% of the time.

Keep up the good work!

Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20
Joined: Mar 2023
Posts: 9
Likes: 1
Member
OP Offline
Member

Joined: Mar 2023
Posts: 9
Likes: 1
Thank you for the reply. I just had a piece of the underside of my tongue removed so I did not require it to be rebuilt. I think about one quarter of my tongue surface is numb. I am hopeful that at least some of the lost sensation will return. I realize that I am not even two months post surgery. And more important I am grateful I am alive.

My other problem is that I constantly worry that any little white spot I see is a return of cancer. I have an appointment with the surgeon a week from Monday so I hope to get some peace of mind at that.

Thank you again for any insight.

Joined: Aug 2020
Posts: 142
Likes: 34
Assistant Administrator
Senior Member (100+ posts)
Offline
Assistant Administrator
Senior Member (100+ posts)

Joined: Aug 2020
Posts: 142
Likes: 34
Dear AJ

Couple thoughts. It took a long time, many months, for my tongue and mouth to heal. You will likely still notice improvement many months out. Ugh, the potential of cancer coming back is such a catch 22. It is totally logical and fair to be worried about it but on the other hand stress is related to it. Keep doing what you are already doing - stay on top of it. Besides my family and friends, my best source of peace relative to cancer returning is faith. Through my cancer surgery and treatment I had life changing experiences that built my faith to a level I never thought possible. And living gratefully is a daily routine. Finally, I suggest a book and a quick internet read. The book is called Anticancer and it is stuffed with tons of data on how to live a life to reduce cancer chances. To find the internet read, Google "Cancer is like a lion in the fridge." Makes me laugh and cry every time I read it (at least a couple dozen times now!).

Stay safe and keep the faith!
Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20
Page 3 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5