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#191435 12-21-2015 11:37 PM
Joined: Apr 2015
Posts: 91
Neicy Offline OP
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I have mentioned this before on here and don't want to be a bore about it. But I am wondering if anyone has had their tongue, post partial glossectomy, continue to feel weird and "tingly" for greater than six months? I had my surgery April 22, 2015. The affected side of my tongue doesn't hurt but it does feel "pinchy" and "tingly." I have been starting to focus on this more than I want to and was wondering if anyone had any feedback on it. Thanks. Denise


Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
Joined: Sep 2014
Posts: 86
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I'm about a year & 3/4 post surgery and am still finding changes in the way my tongue and my neck feel. Overall, I'd say I have increased sensitivity. The doctors seem to think I'm doing very well, when I talk to them at my check-ups. So I figure it's just a case of nerve endings & tissues healing themselves after the fairly substantial trauma that they've been through.


Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
Joined: Apr 2015
Posts: 91
Neicy Offline OP
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Posts: 91
Thanks for the reply Vanpaddler! It is reassuring!


Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
Joined: Sep 2014
Posts: 86
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Sep 2014
Posts: 86
Glad to hear. Just don't be afraid to mention it to the doctor, next time you have a check up.


Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
Joined: Apr 2015
Posts: 91
Neicy Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Apr 2015
Posts: 91
Well he asks if anything is different or hurts. I told him it still feels this way but it doesn't hurt and there is nothing new about it. He didn't think it was anything to be concerned about. But I still stress about it sometimes.


Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
Joined: Nov 2021
Posts: 11
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Joined: Nov 2021
Posts: 11
How long did it take for your tongue to have feeling back where the surgery was? Mine is still numb feeling and swollen on half and my surgery was 3 months ago.


Allison Early
Joined: Mar 2002
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Allison. Please look at the dates on the posts you are asking questions of or replying to. The ones here are 6 years old. These posters are not likely following these threads any longer.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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