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#201064 12-03-2021 05:44 PM
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Ali E Offline OP
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Those who have done radiation on their tongue & neck, did you have to use a feeding tube or did you make it through able to consume enough yourself ???

I don’t want to get one if I don’t reallllly have to.


Allison Early
Ali E #201065 12-03-2021 10:15 PM
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Hello Ali, I felt same way but I was glad I had feeding tube they told me to go ahead have it put , in in case I need it.i am so glad I had it. Without it I would have struggled to eat and maintain my weight I think it would be good idea to have it in case you need it.goodluck.

Paan #201066 12-03-2021 11:07 PM
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Ali E Offline OP
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Can I ask what hurt most? Was it like ulcers in your throat or what was the pain from? Worse than surgery?


Allison Early
Ali E #201067 12-04-2021 01:30 AM
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Ali,mine was mouth sores and swallowing I rinsed my mouth with baking soda and Salt maybe 10 times a day and my dr gave me magic mouthwash.

Paan #201069 12-04-2021 10:52 PM
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Ali E Offline OP
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And how long did you use a feeding tube ? Do you think you could have powered through without?


Allison Early
Ali E #201070 12-05-2021 01:30 AM
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Ali I had to feed through my feeding tube for two and half months I don't think I could have maintain my weight without it but from reading other posts here there are some in our group made it through without tube.

Paan #201071 12-05-2021 01:41 PM
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Ali E Offline OP
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Thank you. Where did you see those other posts?


Allison Early
Ali E #201072 12-05-2021 08:10 PM
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Ali,read under eating and swallowing

Paan #201082 12-13-2021 04:17 PM
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Ali

I had 60 Gray Units of radiation to my mouth and neck on my right side. It made almost all food terrible but I was able to make it through without a tube. Some foods were ok all the way through like scrambled eggs, pancakes, vanilla and chocolate smoothies/shakes, green beans, pudding, simple soups. I kept a log and made certain to get at least 2000 calories a day. I also exercised almost daily so I would increase calories as much as possible. I lost around 15 lbs. I am 6 ft tall and went from around 160 to a low of around 145 a week after my last radiation session. So not too bad. I have gained almost all of it back now.

Choose the path that best fits your lifestyle. I preferred not to have a tube. It was motivation to eat even when things tasted bad.

Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20

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