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Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
Hello Everyone- Miss Kate here- it’s been a long long time since I have come here. Everything is going pretty well.

Wondering if anyone has been able to get Medical Insueandd Cvs e coverage for any dental procedure you’ve had related to Orl cancer?

My lower teeth were starting to get into really really bad shape and during a recent surgery (long story!) I had two teeth knocked out. Since I cannot have implants or extractions and a partial denture with the remaining teeth would have only caused more decay I opted to have partial root canals on all the remaining lower teeth. I was in a lot of pain and the teeth looked really bad too and it was effecting my eating and speaking quite a bit.

My question is how could I try and get medical coverage for the endonic work and or the partial denture work? The end pics cost about $8600 which I was luckily able to put onto a care credit account. I feel like the damage to my teeth is 💯 to the radiation and lack of having a tongue anymore to swallow.

Just wondering if others have gone through this and how was your experience.

Thanks in advance! Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Joined: Apr 2016
Posts: 75
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Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2016
Posts: 75
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Hi I am going through some of the same problems, teeth are chipping and breaking off. I have about 2000 a year in dental coverage and thats it. I do not know of anyone who can help financially. I am going next week to have an specialist look at my teeth. Some have care credit some do financing.


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
Joined: Dec 2010
Posts: 291
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Gold Member (200+ posts)

Joined: Dec 2010
Posts: 291
Miss Kate,
This is the truly unfair aspect of healthcare. It is medical issues that have caused our decay problems in this instance, but you cannot access medical insurance to cover.

I’m just finding out that one can have very good dental care and condition, but radiation gets us anyway. Bummer to say the least. So I’m getting a crown removed with a little decay, a build up over the root canal, and a bridge. No extraction. I feel like we are kicking the can down the road but no choice.

Really why has dental health been placed in a different category? Especially when dealing with fallout from radiation.
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021

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