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| | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Aug 2018 Posts: 345 Likes: 8 | the chemo with immunotherapy my husband had with his second bout of oral cancer was nothing like the first round. Not sure why it was so mild but it was. He then had proton therapy after both of those treatments.
Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
| | | | | Joined: Dec 2018 Posts: 10 Member | | Member
Joined: Dec 2018 Posts: 10 | Muddy I'd been hoping for an update on your situation. I also have an history at UCSF (and managing side effects from immunotherapy).
How's it going? | | | | | Joined: Dec 2019 Posts: 39 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2019 Posts: 39 | I got type 1 diabetes from the immunotherapy, switched to chemo which is going pretty well. It's Carboplatin/paraplatin and Paclitaxel/Taxol/Onxal. I feel great the day of, a little GI upset the next day, more the next day, day 3 after is the worst -I have trouble eating and my energy is low and I just get depressed. Then I feel better and better until I'm able to work a week from the infusion. That leaves 2 weeks of feeling pretty normal and leading an active life before the next round knocks me down again. | | |
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