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Ssl #200683 02-09-2021 02:02 PM
Joined: Oct 2017
Posts: 32
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Joined: Oct 2017
Posts: 32
do a PET scan ? or CT scan ? sounds like you had something , then spread to neck lymph node
just my 2 cents
better be safe than sorry

good luck


T4aN2cM0 left tongue SCC 10/17
Moderately differentiated SCC
PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17
Perineural invasion present
Radiation (IMRT variant) and Chemo therapy ( 2xcispltn) completed 2/18
PET - NED 05/18
CT - NED 07/18, 10/18
CT - NED 02/19, 06/19
MRI H&N, X-ray chest - NED 10/19
MRI H&N NED 05/20
CT - NED 10/2020
Joined: Feb 2021
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I would recommend the PET Scan. The CT Scan missed my SCC in my Tongue although it was clearly there. I can see it when I stick my tongue out. The radiologist indicated that my crowns blocked the visibility in the CT Scan. Please push for the PET Scan if you can it is at a cellular level and shows much better detail!

Joined: Aug 2019
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I already had a ct scan just last month and it was negative. I had to beg to get that..


Sam
DSapien #200704 02-12-2021 04:24 PM
Joined: Aug 2019
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I had to beg for the CT scan as it is. The ENT thinks I’m totally fine. No metal artifact was mentioned in my ct scan report. The ENT I saw is a head & neck cancer specialist and he spent almost 10 minutes going through my entire scan and saw nothing in both my mouth & neck. I don’t know. I’m guessing if it was cancer, both the tongue & neck bump would have had some dramatic growth but neither have. I’m not sure what to do anymore. Maybe see a different ENT & ask for a MRI? Not sure, sometimes I feel like I’m wasting a ton of money and maybe I am just being “crazy” like the doctors think..


Sam
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